Hi,
I was previously in support group for DLA. But failed to attend PIP interview in April. I had put on my PIP claim that I wouldn't be able to attend as I had no one to go with me & can't go to new places etc. I even discussed being unable to go with my GP prior. But when I failed to go in April they asked why. I relisted my many reasons again. But they wrote back stating my claim was refused as they didn't accept I had good reason for not attending.
I sent in my request for them to look at their decision again. I don't have any actual evidence as I was only diagnosed in 2012 & have not been asked to see anyone about it since then.
The LA tried to remove my child 20 months ago. LA plotted to send her to live with my mother, who would send her to school (I've home/community educated my child since birth). I did have 2 psychiatrist/psychologist reports from this. But they were clearly fabricated to support the LAs plans & demonized me for having Asperger's. Yet not actually taking it into account. By alienating my normal actions, such as looking at the noisy road/clock during the assessment.
The original PIP decision/refusal was upheld.
I've been without my DLA since June. I've never had a social worker for me. Despite my child having had several for herself through the 10 years of her life. Even before she was born, as nurses questioned my comprehension/learning ability. Since being diagnosed professionals have often used this to claim my Asperger's puts my daughter at risk. Plus the blackouts I have. Which I think professionals list as panic attacks. Apparently it's fine for me to be at risk or for professionals to just assume I'm not.
The extent of adult social care support was an assessment that they first refused. And had to have children's social workers constantly force them to do- via my child's care plan. And they still took over 7 months, then 7 more as they had to repeat it. Only then did they tell me I must give them all my DLA care money & they would provide a few hours support each week. But no travel help. I told (emailed) them I couldn't afford to pay anything I needed that money for travel/aid/medication etc. Plus my ESA had stopped for many months, when I couldn't get to that interview. So what would happen if this happened again & I couldn't pay. They just said I'd refused help & that was it.
There seems to be no adult social workers where I live (Wokingham). I even tried to contact Bracknell but they refused to help as I don't live in their area. I had a floating support worker but due to time restrictions I've not seen him in over 4 years. I've had advocates, but they don't seem to achieve anything positive.
