• Replies 7 replies
  • Subscribers 28 subscribers
  • Views 1571 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

PIP Chanegover

ClaireHig

Hi,

I was previously in support group for DLA. But failed to attend PIP interview in April. I had put on my PIP claim that I wouldn't be able to attend as I had no one to go with me & can't go to new places etc. I even discussed being unable to go with my GP prior. But when I failed to go in April they asked why. I relisted my many reasons again. But they wrote back stating my claim was refused as they didn't accept I had good reason for not attending.

I sent in my request for them to look at their decision again. I don't have any actual evidence as I was only diagnosed in 2012 & have not been asked to see anyone about it since then.

The LA tried to remove my child 20 months ago. LA plotted to send her to live with my mother, who would send her to school (I've home/community educated my child since birth). I did have 2 psychiatrist/psychologist reports from this. But they were clearly fabricated to support the LAs plans & demonized me for having Asperger's. Yet not actually taking it into account. By alienating my normal actions, such as looking at the noisy road/clock during the assessment.

The original PIP decision/refusal was upheld.

I've been without my DLA since June. I've never had a social worker for me. Despite my child having had several for herself through the 10 years of her life. Even before she was born, as nurses questioned my comprehension/learning ability. Since being diagnosed professionals have often used this to claim my Asperger's puts my daughter at risk. Plus the blackouts I have. Which I think professionals list as panic attacks. Apparently it's fine for me to be at risk or for professionals to just assume I'm not.

The extent of adult social care support was an assessment that they first refused. And had to have children's social workers constantly force them to do- via my child's care plan. And they still took over 7 months, then 7 more as they had to repeat it. Only then did they tell me I must give them all my DLA care money & they would provide a few hours support each week. But no travel help. I told (emailed) them I couldn't afford to pay anything I needed that money for travel/aid/medication etc. Plus my ESA had stopped for many months, when I couldn't get to that interview. So what would happen if this happened again & I couldn't pay. They just said I'd refused help & that was it.

There seems to be no adult social workers where I live (Wokingham). I even tried to contact Bracknell but they refused to help as I don't live in their area. I had a floating support worker but due to time restrictions I've not seen him in over 4 years. I've had advocates, but they don't seem to achieve anything positive.

Parents

  • Hi ClairHig,

    Citizens Advice will be able to give you advice on benefits & your rights.  I would reapply.

    Honestly you have to attend their interviews that's part of their criteria.  kindly ask your family member to attend with you Or a good friend.

    With my diagnosis I got a written assessment of how Asd effected me based on what I'd told the phychologist of my past/recent history.  Did you get this ?

    You could photocopy this & just black out anything that's private.  But leave in info that explains why you can't travel by yourself.

    Why do you think they demonised you ? Unfortunately sometimes people's stereotypes get in the way of them listening to what your trying to communicate must  be confusing to be told your health is putting your daughter at risk, but not having any support for yourself it's a contradiction.

     Probably to do with funding.  

    It would be safer if when out you & your Daughter have some one with you if your prone to blackouts.  

    You can ask Child Social Services because they are already involved

    To refer you for a needs assessment for yourself.  As a matter of urgency.  Again take a supportive person with you to all meetings, if possible.

    During this you can express the need to have someone accompany you when outside because of the blackouts.

    perhaps a trustworthy family member/friend could be paid  by them to help you.

    The helpline on this site or mind.co.uk may have suggestions on advocates in your area.

    Wouldn't advise writing where you live on any forum. Even this one. Be safe.

    Hope you get what you need

Reply

  • Hi ClairHig,

    Citizens Advice will be able to give you advice on benefits & your rights.  I would reapply.

    Honestly you have to attend their interviews that's part of their criteria.  kindly ask your family member to attend with you Or a good friend.

    With my diagnosis I got a written assessment of how Asd effected me based on what I'd told the phychologist of my past/recent history.  Did you get this ?

    You could photocopy this & just black out anything that's private.  But leave in info that explains why you can't travel by yourself.

    Why do you think they demonised you ? Unfortunately sometimes people's stereotypes get in the way of them listening to what your trying to communicate must  be confusing to be told your health is putting your daughter at risk, but not having any support for yourself it's a contradiction.

     Probably to do with funding.  

    It would be safer if when out you & your Daughter have some one with you if your prone to blackouts.  

    You can ask Child Social Services because they are already involved

    To refer you for a needs assessment for yourself.  As a matter of urgency.  Again take a supportive person with you to all meetings, if possible.

    During this you can express the need to have someone accompany you when outside because of the blackouts.

    perhaps a trustworthy family member/friend could be paid  by them to help you.

    The helpline on this site or mind.co.uk may have suggestions on advocates in your area.

    Wouldn't advise writing where you live on any forum. Even this one. Be safe.

    Hope you get what you need

Children
No Data