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Higher Level ASD - What does it mean

VickiE4

I have a 4.5 year old son who has been diagnosed, as possibly, being higher level ASD. A number of interventions have been put in place and we are now waiting for a review to confirm or not diagnosis. 

 

I don't seem to be able to find information on what HL ASD actually means in terms of lifestyle etc. Can anyone enlighten me?

Parents

  • Hi Vicki

    Oh that old chestnut of us being bad parents....it's sooo frustrating and annoying, isn't it?

    I must admit, even after 5 years of dealing with it, I still sometimes find it difficult to explain to strangers how my son's autism impacts on his life and his ability to 'behave'. 

    Best I've come up with is to say that he has autism and although he has a good IQ and language, he is still very disabled by his autism.  Then I might say that he doesnt have the thinking skills to be able to modify his responses in the same way as a non-autistic child....and that can sometimes look like he is being naughty or rude.  He isnt being either - he just isnt able to cope in social situations.

    The worst is when they say 'well you shouldnt bring him out then' or stuff like that.

    It's hard - especially when another parent is being aggressive about it :(

    Sometimes it's best just to cut and run if it's all going pear-shaped!  We can only do our best.  At the end of the day, if someone is having a go, it's their ignorance and prejudice that makes them in the wrong, not us.  Thinking of that helps me to remain sane if I do have to make a hasty exit!

    Zoe

Reply

  • Hi Vicki

    Oh that old chestnut of us being bad parents....it's sooo frustrating and annoying, isn't it?

    I must admit, even after 5 years of dealing with it, I still sometimes find it difficult to explain to strangers how my son's autism impacts on his life and his ability to 'behave'. 

    Best I've come up with is to say that he has autism and although he has a good IQ and language, he is still very disabled by his autism.  Then I might say that he doesnt have the thinking skills to be able to modify his responses in the same way as a non-autistic child....and that can sometimes look like he is being naughty or rude.  He isnt being either - he just isnt able to cope in social situations.

    The worst is when they say 'well you shouldnt bring him out then' or stuff like that.

    It's hard - especially when another parent is being aggressive about it :(

    Sometimes it's best just to cut and run if it's all going pear-shaped!  We can only do our best.  At the end of the day, if someone is having a go, it's their ignorance and prejudice that makes them in the wrong, not us.  Thinking of that helps me to remain sane if I do have to make a hasty exit!

    Zoe

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