• Replies 4 replies
  • Subscribers 28 subscribers
  • Views 752 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Want to crate a facebook blog

Rach91

Hi my names Rachel I'm 24 and I have asperges syndrome. I have been making a few posts on here recently about feeling down. At the moment things are still sensitive right now between me and sadly my ex Chris. But I'm getting stronger each day and Chris still wants to be my Friend but we can't really talk right now without argunig and getting upset but hopefully with a bit of time we will be able to talk. Anyway engough of that I want to set up a facebook blog called Rachel's world of difficulty and hope. I want to post some of the things I do on it some of the positive moments and some of the difficult times of my life. I'm having a lot of trouble setting it up not sure what to put and how to get peoples attention. Has anyone got any advice I would be really greatful thanks. Also heres a T9Qlink of me doing some public speaking feel free to watch    (Removed by moderator*)

===

*Hi Rachel. Thanks for joing the community and sharing with us you experiences. I'm sure you will find people here who have similar feelings and experiences. This community is anoymous however, so that people can be open about what are sometime very personal matters. Although I know you want to promote your blog.. it does allow you to be identified. So I have removed the link. You may fin using twitter and facebook better ways of promoting your blog. Best wishes Bob Mod

 

  • Former Member
    Former Member

    Can I suggest that this discussion be taken to another thread rather than carrying on here. I don't suppose it is much help to Rachel :-(

  • As i said, you are welcome to view yourself as a sufferer but please don't think that all autistic people find that negative thinking to be acceptable to them or to describe their identity. I'm a member of a local group of at least 25 autistic people who feel the same way. Most of them would never post on this site because of the generally negative way that autism is seen here.Yes, they have problems but they are also proud of being autistic.

    Living in this society when you are autistic isn't easy but its because of the way society is set up and the way it treats us, not because of autism itself. Fifty years ago being gay was seen as a terrible affliction and society made gay people's lives very hard and viewed them negatively. The problem was attitudes and not sexuality. Today attitudes are different and no one holds that view. I hope one day autism will be seen as just another difference and society will adapt accordingly so life is less of a struggle for all of us.

    How about 'autistic people' instead of 'sufferers' ?

  • Former Member
    Former Member

    Dear Clovis,

    I did not go to the doctor and get referred to a specialist because I was having so much fun and needed an explanation for that happy state of affairs. I went to the doctor because my life was off the rails. I suspect that my experience is in line with the majority experience of people with a diagnosis. If you don't want me to use the word sufferers then please provide a better alternative that is democratically acceptable to the majority of people on this website.

    Autism is a problem that needs to be tackled and solved but any notion that it is not a problem is at odds with the overall sentiment that I detect from reading the posts in this forum.

  • Former Member
    Former Member

    Hi Rachel

    There is a common urge amongst people with autism to tell the world all about it. There are lots of blogs and books by sufferers and I also felt the need to tell everyone I knew when I got diagnosed.

    One of the factors in this is that we can be very good at telling but not very good at listening.

    There is also an issue of privacy and discretion (for both your ex BF and yourself).

    I would urge you to spend more time reading and learning and talking about how to engage with the world and how to strive to understand other people's perspectives and thoughts. Other people are generally completely oblivious to our struggles but we have to share the world with them so there is a lot to be gained by studying them rather than trying to educate them about the world as we see it.

    Please don't take this as criticism, if you do then please see me as a critical friend who is questioning and challenging.