Non supportive Nan

Hi everyone, I have very recently joint to NAS and this is my first post regarding my son. He is 2 years old and officially got diagnosed last week. It's obviously been emotional, I know you all understand that. But what I have struggled with the most is the lack of support from family. Most people seem to be in denial. I've been angry because I don't ask for anything other then understanding. But people are struggling with this because "he doesn't look autistic" I called my mum as soon as I got out of the meeting to confirm little ones autism, I don't really know what I was expecting her to say but it got into the subject of him being non verbal and she said it was my fault. I know deep down its not really my fault and that she is just dealing with this anyway she can, however, it's made me realise that she just hasn't got it. And now I think back, everytime she has spoken to me or anyone else, she mentions he has slight or mild autism, with the emphasis being on the SLIGHT or MILD. 

Sorry to bore you all with this, I really didn't think she would upset me as much as what it has but out of all that has happened over the last year, this is what actually broke my heart, that if all people, my usually biggest supporter and cheerleader has dropped me and pulled away. 

im a bit lost and sad

love to you all x

Parents
  • Hi, I'm new on the site too.... I know how you feel to some extent... My family are supportive but at the same time it feels like they don't want to understand or talk about it. At times we've had comments like "if you behave you can come" and things like that which don't help and if anything they send my son into oblivion !

    I feel overwhelmed with all the information and appointments but i know it's also really confusing and stressful for my son and that's what's keeping me going. At first i felt a bit robbed, like something had been taken away from me..... It's difficult to explain.... But now i just feel that the battle's we've been having everyday with school etc. won't beat us !!! He's my baby, he's not changed since his diagnosis, he's still my gorgeous unique little man.

    I'm not sure i've actually said anything that would help........... In fact i've rambled on.......

    Keep going, the only way is up xx

Reply
  • Hi, I'm new on the site too.... I know how you feel to some extent... My family are supportive but at the same time it feels like they don't want to understand or talk about it. At times we've had comments like "if you behave you can come" and things like that which don't help and if anything they send my son into oblivion !

    I feel overwhelmed with all the information and appointments but i know it's also really confusing and stressful for my son and that's what's keeping me going. At first i felt a bit robbed, like something had been taken away from me..... It's difficult to explain.... But now i just feel that the battle's we've been having everyday with school etc. won't beat us !!! He's my baby, he's not changed since his diagnosis, he's still my gorgeous unique little man.

    I'm not sure i've actually said anything that would help........... In fact i've rambled on.......

    Keep going, the only way is up xx

Children
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