Separate forum/community for autistic adults ?

Hi

Recently the suggestion has been made that a separate forum of community is needed for Autistic Adults. 

I would welcome thoughts, comments and ideas on this subject.

Starter questions:

Q: Is there a need for "another" community when others exist online?

Q: Is the NAS the best organisation to fascilitate this?

Q: Could it be self-managed but just technically supported by the NAS?

Q: Should it be "part" of this community or completely separate?

Regards

Bob Chase: Digital Services Manager

Parents
  • And thanks for your clarification, too.

    I appreciate the "old timers" taking time out to explain this to "noobs" like me.  I must admit, many of the events have seemed very confusing without knowing the context.

    I do get the impression, as you suggest. that the NAS treats the forum as an inconvenient afterthought.  The outdated technology and lack of trained counsellors is poor in my opinion for a charity that is the primary first contact point for people on the spectrum and their carers (at my diagnosis, NAS literature was the only thing I was offered!).  With it being so common that autistic people dislike the telephone, it isn't difficult to see why the forum would be a more comfortable place for people on the spectrum to come for help.

    I don't begrudge offering what little help I can here - but only because people like you, CC and many others have done the same for me.  I certainly don't do it out of any loyalty to the NAS.  I have never even considered becoming a member of the organisation, as I realised very early on that adults, particularly those with a late daignosis, are largely invisible to them.

    When I get the usual e-mails from the NAS, my usual response is to skim through it, then think "really, that's it?!", and in the bin it goes.  I don't want to hear about "autism aware" concerts at the other end of the country and that I can't afford - that really doesn't help to make my day dealing with an "autism unaware" society any easier.

Reply
  • And thanks for your clarification, too.

    I appreciate the "old timers" taking time out to explain this to "noobs" like me.  I must admit, many of the events have seemed very confusing without knowing the context.

    I do get the impression, as you suggest. that the NAS treats the forum as an inconvenient afterthought.  The outdated technology and lack of trained counsellors is poor in my opinion for a charity that is the primary first contact point for people on the spectrum and their carers (at my diagnosis, NAS literature was the only thing I was offered!).  With it being so common that autistic people dislike the telephone, it isn't difficult to see why the forum would be a more comfortable place for people on the spectrum to come for help.

    I don't begrudge offering what little help I can here - but only because people like you, CC and many others have done the same for me.  I certainly don't do it out of any loyalty to the NAS.  I have never even considered becoming a member of the organisation, as I realised very early on that adults, particularly those with a late daignosis, are largely invisible to them.

    When I get the usual e-mails from the NAS, my usual response is to skim through it, then think "really, that's it?!", and in the bin it goes.  I don't want to hear about "autism aware" concerts at the other end of the country and that I can't afford - that really doesn't help to make my day dealing with an "autism unaware" society any easier.

Children
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