Separate forum/community for autistic adults ?

Hi

Recently the suggestion has been made that a separate forum of community is needed for Autistic Adults. 

I would welcome thoughts, comments and ideas on this subject.

Starter questions:

Q: Is there a need for "another" community when others exist online?

Q: Is the NAS the best organisation to fascilitate this?

Q: Could it be self-managed but just technically supported by the NAS?

Q: Should it be "part" of this community or completely separate?

Regards

Bob Chase: Digital Services Manager

Parents
  • Hi Bob C Mod

    I don't think there is much on the net specifically for Adults with Autism. There is lots for parents and carers of children with Autism. But have personally found very little and I have looked and looked over the last year since having had the diagnosis. I am so frustrated that there is so little support out there. Naturally it is different for parents are concerned about the schooling and behaviour and we can't learn from their inputs. I benefit from online forums as such as can safely say here what I wouldn't say if i went to an actual group.  Not that I write too much as such, just easier to say some things in written word than verbally.  But there is so little support out there and even NAS is often more about parents experience with children so 'I' end up feeling redundant as in it supposed to be for all of us.  It a difficult question in some respects because i know from myself am too shy.  Coffee and chat sessions are pointless for me. I have even gone to the adult partnership board in my town as am used to what happening and find more parents etc go than adults with ASD so feedback be not accurate at all. Sorry just an opportunity to rant there I have said it there as when they were doing the audit i realised it was parents answering questions that wasn't the experience of adults but of children and so i think altered the answer...

    I would really want more to be done to show support towards adults and older adults. It was nice to read a comment that one parent is teaching her son about his autism because one day he will have to advocate for himself.  As adults we have struggled with all of this and by chance if we are lucky drop on people who will help us as indivudals as such. 

    sorry am just going off on one I think.  It is important to keep everyone who uses this website together to allow easy browsing for when they are finding out or have a specific question themselves. But please, rather than concentrate on 'services' for parents with children there is a lot out there, can we have more help please... Specially when one is newish to all this. Even there are more books for parents and children than for the adult with autism to learn about it for themeves. 

    sorry it a niggle for me as was one of my first posts on here when i 'came back' last year.

Reply
  • Hi Bob C Mod

    I don't think there is much on the net specifically for Adults with Autism. There is lots for parents and carers of children with Autism. But have personally found very little and I have looked and looked over the last year since having had the diagnosis. I am so frustrated that there is so little support out there. Naturally it is different for parents are concerned about the schooling and behaviour and we can't learn from their inputs. I benefit from online forums as such as can safely say here what I wouldn't say if i went to an actual group.  Not that I write too much as such, just easier to say some things in written word than verbally.  But there is so little support out there and even NAS is often more about parents experience with children so 'I' end up feeling redundant as in it supposed to be for all of us.  It a difficult question in some respects because i know from myself am too shy.  Coffee and chat sessions are pointless for me. I have even gone to the adult partnership board in my town as am used to what happening and find more parents etc go than adults with ASD so feedback be not accurate at all. Sorry just an opportunity to rant there I have said it there as when they were doing the audit i realised it was parents answering questions that wasn't the experience of adults but of children and so i think altered the answer...

    I would really want more to be done to show support towards adults and older adults. It was nice to read a comment that one parent is teaching her son about his autism because one day he will have to advocate for himself.  As adults we have struggled with all of this and by chance if we are lucky drop on people who will help us as indivudals as such. 

    sorry am just going off on one I think.  It is important to keep everyone who uses this website together to allow easy browsing for when they are finding out or have a specific question themselves. But please, rather than concentrate on 'services' for parents with children there is a lot out there, can we have more help please... Specially when one is newish to all this. Even there are more books for parents and children than for the adult with autism to learn about it for themeves. 

    sorry it a niggle for me as was one of my first posts on here when i 'came back' last year.

Children
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