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AS people, please can you help me?

classic codger
over 8 years ago

I am trying, with great difficulty, to understand something. I could really use your help with this, it's literaly taken me over (you know the one) and I need the thinking of others. Call it an intervention!

Before I begin, please can I ask you to look over the following article?;

nymag.com/.../

I have seen many posts from NT parents about 'treatment' for AS.

The question I have asked myself is, 'if I could go back and be changed into an NT by 'treatment', would I choose it?'

My firm answer is 'No'. I am the sum total of a life spent as an AS person. I can't change my past, so my best option is to use the learning that is  'the sum of who I am' to help others if I can, and especially for the next generation. If any of you think that I can be helpful and supportive, understanding and insightful, fine. If you think the opposite, also fine and I am sorry that I wasn't helpful. I do what everyone does - the best I can.

I'm an egalitarian by instinct. I will state my thoughts and opinions, but they are mine alone. When I read other people's posts, I assume the right to agree or disagree, and simply expect the same fairness back.

Thank you for listening this far, and now I've come to my taxing absorption.

I read this post under the title Stem cell treatment for autism: 'Has anyone undergone stem cell treatment for autism?'

I responded with '

This is my personal opinion. I don't argue my personal opinions, just for them.

How about 'tretament' for being NT? Their capacity for being the most illogical, spiteful, self-destructive creature on this planet leaves me staggered. I pity the poor creatures and their lack of insight, but what can you do? No-one is researching 'treatment' for them, because they collectively agree that their unsanity is 'normal'.

The inmates are running the asylum.

Now, I thought that I was humourously disparaging the idea of 'treating' people just because they are different. It is my belief that most people will be able to see that I have reiterated the concepts of the same thing as the poster, with our roles reversed. Here's your mirror, as it were.
I just discovered that I got moderated for this post . Apparently, I should watch my language. A particular word picked out is asylum because it is derrogatory towards past attitudes to mental health (?).
I am totaly confused. I don't know why 'mental health' is being brought into it. Given the various current uses of the word 'asylum' I don't know how it becomes offensive, even in context, 'the inmates are running the asylum' is a common concept and has been the root idea behind several award winning books, plays and films, yet it appears that some ignoramus doesn't like it. And apparently, I'm supposed to know this and understand it in their particular case. Que?
Please, any insights will do. Sooner or later one of you will say something that will help me get a grip on this. You know the one where the more you try, the more you're shaking your head, you're laughing bleakly, you don't know whether to be angry, offended, confused, puch drunk, weakened, disempowered, desperate to understand, shocked, fed up with mods public messages yet again, privacy invaded, and a whole bunch more, and because you can't choose one, you have them all at once instead. That's where I am right now.
Phew! Bit of a maze. Ariadne, the thread!
Parents
  • over 8 years ago

    longman said:

    I'm also glad Recombinantsocks is around to give a balanced view and attempt appeasement with the moderators. There is no point in being destructive in our reactions. The forum is (was) a valuable resource, and as Kolojaro has explained it is a lifeline and a guide to living with autism.

    Appeasement is definitely not my goal! I am not Mr Chamberlain and Bob et al are not ***! Seriously though, we absolutely must not simply forgive and forget. We have to forgive but not forget as I really don't want this whole thing to come round again like groundhog day.

    I am trying to work out why this is gone so horribly wrong and what can be changed to improve the situation. The status quo is not viable but I think that the situation is not beyond retrieval. 

    I think we need more sensitive moderation that fully accounts for the special nature of the forum visitors. Moderators need special autism training and negotiation skills before being let loose here. The moderators should also have easy access to advisers who can introduce more professional help when we struggle to make headway with problems where our lay knowledge falls short of answering people's needs.

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  • over 8 years ago

    longman said:

    I'm also glad Recombinantsocks is around to give a balanced view and attempt appeasement with the moderators. There is no point in being destructive in our reactions. The forum is (was) a valuable resource, and as Kolojaro has explained it is a lifeline and a guide to living with autism.

    Appeasement is definitely not my goal! I am not Mr Chamberlain and Bob et al are not ***! Seriously though, we absolutely must not simply forgive and forget. We have to forgive but not forget as I really don't want this whole thing to come round again like groundhog day.

    I am trying to work out why this is gone so horribly wrong and what can be changed to improve the situation. The status quo is not viable but I think that the situation is not beyond retrieval. 

    I think we need more sensitive moderation that fully accounts for the special nature of the forum visitors. Moderators need special autism training and negotiation skills before being let loose here. The moderators should also have easy access to advisers who can introduce more professional help when we struggle to make headway with problems where our lay knowledge falls short of answering people's needs.

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