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AS people, please can you help me?

classic codger

I am trying, with great difficulty, to understand something. I could really use your help with this, it's literaly taken me over (you know the one) and I need the thinking of others. Call it an intervention!

Before I begin, please can I ask you to look over the following article?;

nymag.com/.../

I have seen many posts from NT parents about 'treatment' for AS.

The question I have asked myself is, 'if I could go back and be changed into an NT by 'treatment', would I choose it?'

My firm answer is 'No'. I am the sum total of a life spent as an AS person. I can't change my past, so my best option is to use the learning that is  'the sum of who I am' to help others if I can, and especially for the next generation. If any of you think that I can be helpful and supportive, understanding and insightful, fine. If you think the opposite, also fine and I am sorry that I wasn't helpful. I do what everyone does - the best I can.

I'm an egalitarian by instinct. I will state my thoughts and opinions, but they are mine alone. When I read other people's posts, I assume the right to agree or disagree, and simply expect the same fairness back.

Thank you for listening this far, and now I've come to my taxing absorption.

I read this post under the title Stem cell treatment for autism: 'Has anyone undergone stem cell treatment for autism?'

I responded with '

This is my personal opinion. I don't argue my personal opinions, just for them.

How about 'tretament' for being NT? Their capacity for being the most illogical, spiteful, self-destructive creature on this planet leaves me staggered. I pity the poor creatures and their lack of insight, but what can you do? No-one is researching 'treatment' for them, because they collectively agree that their unsanity is 'normal'.

The inmates are running the asylum.

Now, I thought that I was humourously disparaging the idea of 'treating' people just because they are different. It is my belief that most people will be able to see that I have reiterated the concepts of the same thing as the poster, with our roles reversed. Here's your mirror, as it were.
I just discovered that I got moderated for this post . Apparently, I should watch my language. A particular word picked out is asylum because it is derrogatory towards past attitudes to mental health (?).
I am totaly confused. I don't know why 'mental health' is being brought into it. Given the various current uses of the word 'asylum' I don't know how it becomes offensive, even in context, 'the inmates are running the asylum' is a common concept and has been the root idea behind several award winning books, plays and films, yet it appears that some ignoramus doesn't like it. And apparently, I'm supposed to know this and understand it in their particular case. Que?
Please, any insights will do. Sooner or later one of you will say something that will help me get a grip on this. You know the one where the more you try, the more you're shaking your head, you're laughing bleakly, you don't know whether to be angry, offended, confused, puch drunk, weakened, disempowered, desperate to understand, shocked, fed up with mods public messages yet again, privacy invaded, and a whole bunch more, and because you can't choose one, you have them all at once instead. That's where I am right now.
Phew! Bit of a maze. Ariadne, the thread!
Parents

  • I'm still here, though barely.

    To all the 'veterens', if you do find somewhere to go please let me know. It might even be worth looking into making a website forum of our own for us to interact on.

    In short: I am leaving.

    I am being treated for depression and my family are urging me for my own welfare to leave the forum. With the Department of Work and Pensions driving me to near suicide (luckily I'm living with family at the moment so not been able to act on the thoughts) because of Personal Independance Payment (where my difficulties as a young adult on the spectrum are belittled and demeaned) I had hoped checking back in to this forum on an almost regular basis would help.*

    Instead I find more people like me who are also having their opinions demeaned and (seemingly) deliberately targeted because they are not 'NT'. The people I respect and admire can't take it anymore and frankly neither can I.

    At the 'top' there will be no help for us. They don't care. They seem to feel they can treat adults on the spectrum as children.

    Haven't we lived more or less through a hostile hell as a result of our condition? Isn't the only reassurance we can find among others like us to know we're not alone?

    Until the mods engage in a full on gritty debate then I cannot trust them. I don't care if they're on the spectrum or off their actions have proven them untrustworthy and somehow its OUR job to 'earn it back'.

    I may autistic, but I'm not retarded. Even NT's don't function like that.

    Let me know when an alternative site is found, my family already boycott the NAS in favour of smaller groups that actually seem to do more than publicity events in local areas.

    Yes I am bitter. I feel isolated and attacked. If someone mods 'retarded' then kindly insert 'a moron' if it makes you all feel better.

    *And before a mod tries to downplay my feelings let me make it loud and clear: This forum and the actions of the mods HAVE CONTRIBUTED to my depression and suicidal thoughts. There is an actual correlation between visiting this website and my more dangerous 'moods' as noticed by my family (hence why they no longer want me visiting this site).

    To Longman, CC, Electra, Recombiantsocks and others:

    Thank you all for your support and advice. You have been a constant source of reassurance, refreshing debate and even more vital insight/information I literally couldn't have lived without. Seeing some of you censored has broken my heart (or rather driven me to panic attacks, testament to how much this ordeal has been harmful). I'll be following this thread under supervision from family to see if we can find a new home.



    Edit: For the record I'm copying this just in case I'm the next target for the Mods.

Reply

  • I'm still here, though barely.

    To all the 'veterens', if you do find somewhere to go please let me know. It might even be worth looking into making a website forum of our own for us to interact on.

    In short: I am leaving.

    I am being treated for depression and my family are urging me for my own welfare to leave the forum. With the Department of Work and Pensions driving me to near suicide (luckily I'm living with family at the moment so not been able to act on the thoughts) because of Personal Independance Payment (where my difficulties as a young adult on the spectrum are belittled and demeaned) I had hoped checking back in to this forum on an almost regular basis would help.*

    Instead I find more people like me who are also having their opinions demeaned and (seemingly) deliberately targeted because they are not 'NT'. The people I respect and admire can't take it anymore and frankly neither can I.

    At the 'top' there will be no help for us. They don't care. They seem to feel they can treat adults on the spectrum as children.

    Haven't we lived more or less through a hostile hell as a result of our condition? Isn't the only reassurance we can find among others like us to know we're not alone?

    Until the mods engage in a full on gritty debate then I cannot trust them. I don't care if they're on the spectrum or off their actions have proven them untrustworthy and somehow its OUR job to 'earn it back'.

    I may autistic, but I'm not retarded. Even NT's don't function like that.

    Let me know when an alternative site is found, my family already boycott the NAS in favour of smaller groups that actually seem to do more than publicity events in local areas.

    Yes I am bitter. I feel isolated and attacked. If someone mods 'retarded' then kindly insert 'a moron' if it makes you all feel better.

    *And before a mod tries to downplay my feelings let me make it loud and clear: This forum and the actions of the mods HAVE CONTRIBUTED to my depression and suicidal thoughts. There is an actual correlation between visiting this website and my more dangerous 'moods' as noticed by my family (hence why they no longer want me visiting this site).

    To Longman, CC, Electra, Recombiantsocks and others:

    Thank you all for your support and advice. You have been a constant source of reassurance, refreshing debate and even more vital insight/information I literally couldn't have lived without. Seeing some of you censored has broken my heart (or rather driven me to panic attacks, testament to how much this ordeal has been harmful). I'll be following this thread under supervision from family to see if we can find a new home.



    Edit: For the record I'm copying this just in case I'm the next target for the Mods.

Children
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