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AS people, please can you help me?

classic codger

I am trying, with great difficulty, to understand something. I could really use your help with this, it's literaly taken me over (you know the one) and I need the thinking of others. Call it an intervention!

Before I begin, please can I ask you to look over the following article?;

nymag.com/.../

I have seen many posts from NT parents about 'treatment' for AS.

The question I have asked myself is, 'if I could go back and be changed into an NT by 'treatment', would I choose it?'

My firm answer is 'No'. I am the sum total of a life spent as an AS person. I can't change my past, so my best option is to use the learning that is  'the sum of who I am' to help others if I can, and especially for the next generation. If any of you think that I can be helpful and supportive, understanding and insightful, fine. If you think the opposite, also fine and I am sorry that I wasn't helpful. I do what everyone does - the best I can.

I'm an egalitarian by instinct. I will state my thoughts and opinions, but they are mine alone. When I read other people's posts, I assume the right to agree or disagree, and simply expect the same fairness back.

Thank you for listening this far, and now I've come to my taxing absorption.

I read this post under the title Stem cell treatment for autism: 'Has anyone undergone stem cell treatment for autism?'

I responded with '

This is my personal opinion. I don't argue my personal opinions, just for them.

How about 'tretament' for being NT? Their capacity for being the most illogical, spiteful, self-destructive creature on this planet leaves me staggered. I pity the poor creatures and their lack of insight, but what can you do? No-one is researching 'treatment' for them, because they collectively agree that their unsanity is 'normal'.

The inmates are running the asylum.

Now, I thought that I was humourously disparaging the idea of 'treating' people just because they are different. It is my belief that most people will be able to see that I have reiterated the concepts of the same thing as the poster, with our roles reversed. Here's your mirror, as it were.
I just discovered that I got moderated for this post . Apparently, I should watch my language. A particular word picked out is asylum because it is derrogatory towards past attitudes to mental health (?).
I am totaly confused. I don't know why 'mental health' is being brought into it. Given the various current uses of the word 'asylum' I don't know how it becomes offensive, even in context, 'the inmates are running the asylum' is a common concept and has been the root idea behind several award winning books, plays and films, yet it appears that some ignoramus doesn't like it. And apparently, I'm supposed to know this and understand it in their particular case. Que?
Please, any insights will do. Sooner or later one of you will say something that will help me get a grip on this. You know the one where the more you try, the more you're shaking your head, you're laughing bleakly, you don't know whether to be angry, offended, confused, puch drunk, weakened, disempowered, desperate to understand, shocked, fed up with mods public messages yet again, privacy invaded, and a whole bunch more, and because you can't choose one, you have them all at once instead. That's where I am right now.
Phew! Bit of a maze. Ariadne, the thread!
Parents

  • Thank you to Missdemena, for taking the trouble to explain what the hell this has all been about!  I was completely unaware of whatever occurred 3 months ago. I only joined this forum around then (presumably just after). I was going through a hard time with diagnosis assessments back then and felt very glad to find this forum. I dislike Wrong Planet despite its excellent name, for reasons somebody else mentioned above, plus the extremely annoying fact that it can be nightmarishly frustrating trying to get anything to actually post on there. 

    I found some very good advice, support and help on this forum, from members who have contributed to (and started) this thread.  I know nothing whatsoever about the NAS. I don't have an opinion about the NAS, and I don't wish to form one based on what I've read here - I would rather make my own mind up based on my own experience, in my own time.  But I must admit I find it hard to believe that the NAS exists to present a sanitised image of autism for the sake of fundraising - if this is true it is a veritabe scandal and should be exposed. If it isn't, I hope the allegation will be retracted.

    I've been looking at some Youtube videos by and about people with AS. One of the more interesting contributors expressed the hope that people who obtain an AS diagnosis resist any urge to use it as an excuse for bad behaviour. I can understand what she meant.  As far as I know (which isn't much - I am very much at the beginning of my learning about AS), unreasonable behaviour by intelligent adults at the high functioning end of the spectrum isn't regarded as a 'trait'.  We're surely as capable of being reasonable or unreasonable as the rest of the population?  

    Without the benefit of knowledge of what happened on this forum back in November or whenever, the reactions to what seemed like a mistake by a moderator came across as quite unreasonable and overblown.  Maybe, given the background of which I am ignorant, the reactions were more understandable: without knowing what happened back then I can't even think about that.

    Now that the matter of excessive moderation has been pinpointed, I can see that it does actually seem rather over-zealous. Again, I can't even think about why that might have become so, as I don't have the information. 

    I hope the moderators (who will all be following this thread carefully, I'm sure) will give serious thought to the issues raised and ask themselves how they can change, with the aim of making this forum as good as it can possibly be for people with, and carers for people with, ASDs.

    To all those who are on the brink of leaving, all I'll say is that I hope you won't. How about giving it one last chance? How about setting out exactly what you would like to see changed and addressing your thoughts and wishes to the moderators, on a new thread on this forum? 

    To the moderators, how about letting this happen and engaging in a dialogue on such a thread on this forum?

    PS: Thanks too, Recom, for your excellently written last post

    PPS: To Missdemena - just re-read your post and realised I'd like to know something, if you wouldn't mind telling me?  How do you know these things? You refer to two people being unable to post on this forum last weekend - I've been following this thread and I didn't see that. But I've seen it said, on here, that members have no way of communicating with each other outside this public forum - so how is it that you know?  Through this whole thread I've felt as if everyone else knows something I'm in the dark about - hence my repeated questions and expressions of frustration.

    All I can think of is that the information was hidden (from me - I'm not saying deliberately hidden) within one of the very confusing posts that seemd to be a jumble of quotes and current comment. I didn't 'get' those at all, and I can't see how anyone could have made much of them. (there may ony have been one of those posts - I'm not trawling back through the whole thing to find out though).

    Thinking about it has got me quite annoyed again. So I'll shut up!

Reply

  • Thank you to Missdemena, for taking the trouble to explain what the hell this has all been about!  I was completely unaware of whatever occurred 3 months ago. I only joined this forum around then (presumably just after). I was going through a hard time with diagnosis assessments back then and felt very glad to find this forum. I dislike Wrong Planet despite its excellent name, for reasons somebody else mentioned above, plus the extremely annoying fact that it can be nightmarishly frustrating trying to get anything to actually post on there. 

    I found some very good advice, support and help on this forum, from members who have contributed to (and started) this thread.  I know nothing whatsoever about the NAS. I don't have an opinion about the NAS, and I don't wish to form one based on what I've read here - I would rather make my own mind up based on my own experience, in my own time.  But I must admit I find it hard to believe that the NAS exists to present a sanitised image of autism for the sake of fundraising - if this is true it is a veritabe scandal and should be exposed. If it isn't, I hope the allegation will be retracted.

    I've been looking at some Youtube videos by and about people with AS. One of the more interesting contributors expressed the hope that people who obtain an AS diagnosis resist any urge to use it as an excuse for bad behaviour. I can understand what she meant.  As far as I know (which isn't much - I am very much at the beginning of my learning about AS), unreasonable behaviour by intelligent adults at the high functioning end of the spectrum isn't regarded as a 'trait'.  We're surely as capable of being reasonable or unreasonable as the rest of the population?  

    Without the benefit of knowledge of what happened on this forum back in November or whenever, the reactions to what seemed like a mistake by a moderator came across as quite unreasonable and overblown.  Maybe, given the background of which I am ignorant, the reactions were more understandable: without knowing what happened back then I can't even think about that.

    Now that the matter of excessive moderation has been pinpointed, I can see that it does actually seem rather over-zealous. Again, I can't even think about why that might have become so, as I don't have the information. 

    I hope the moderators (who will all be following this thread carefully, I'm sure) will give serious thought to the issues raised and ask themselves how they can change, with the aim of making this forum as good as it can possibly be for people with, and carers for people with, ASDs.

    To all those who are on the brink of leaving, all I'll say is that I hope you won't. How about giving it one last chance? How about setting out exactly what you would like to see changed and addressing your thoughts and wishes to the moderators, on a new thread on this forum? 

    To the moderators, how about letting this happen and engaging in a dialogue on such a thread on this forum?

    PS: Thanks too, Recom, for your excellently written last post

    PPS: To Missdemena - just re-read your post and realised I'd like to know something, if you wouldn't mind telling me?  How do you know these things? You refer to two people being unable to post on this forum last weekend - I've been following this thread and I didn't see that. But I've seen it said, on here, that members have no way of communicating with each other outside this public forum - so how is it that you know?  Through this whole thread I've felt as if everyone else knows something I'm in the dark about - hence my repeated questions and expressions of frustration.

    All I can think of is that the information was hidden (from me - I'm not saying deliberately hidden) within one of the very confusing posts that seemd to be a jumble of quotes and current comment. I didn't 'get' those at all, and I can't see how anyone could have made much of them. (there may ony have been one of those posts - I'm not trawling back through the whole thing to find out though).

    Thinking about it has got me quite annoyed again. So I'll shut up!

Children
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