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AS people, please can you help me?

classic codger

I am trying, with great difficulty, to understand something. I could really use your help with this, it's literaly taken me over (you know the one) and I need the thinking of others. Call it an intervention!

Before I begin, please can I ask you to look over the following article?;

nymag.com/.../

I have seen many posts from NT parents about 'treatment' for AS.

The question I have asked myself is, 'if I could go back and be changed into an NT by 'treatment', would I choose it?'

My firm answer is 'No'. I am the sum total of a life spent as an AS person. I can't change my past, so my best option is to use the learning that is  'the sum of who I am' to help others if I can, and especially for the next generation. If any of you think that I can be helpful and supportive, understanding and insightful, fine. If you think the opposite, also fine and I am sorry that I wasn't helpful. I do what everyone does - the best I can.

I'm an egalitarian by instinct. I will state my thoughts and opinions, but they are mine alone. When I read other people's posts, I assume the right to agree or disagree, and simply expect the same fairness back.

Thank you for listening this far, and now I've come to my taxing absorption.

I read this post under the title Stem cell treatment for autism: 'Has anyone undergone stem cell treatment for autism?'

I responded with '

This is my personal opinion. I don't argue my personal opinions, just for them.

How about 'tretament' for being NT? Their capacity for being the most illogical, spiteful, self-destructive creature on this planet leaves me staggered. I pity the poor creatures and their lack of insight, but what can you do? No-one is researching 'treatment' for them, because they collectively agree that their unsanity is 'normal'.

The inmates are running the asylum.

Now, I thought that I was humourously disparaging the idea of 'treating' people just because they are different. It is my belief that most people will be able to see that I have reiterated the concepts of the same thing as the poster, with our roles reversed. Here's your mirror, as it were.
I just discovered that I got moderated for this post . Apparently, I should watch my language. A particular word picked out is asylum because it is derrogatory towards past attitudes to mental health (?).
I am totaly confused. I don't know why 'mental health' is being brought into it. Given the various current uses of the word 'asylum' I don't know how it becomes offensive, even in context, 'the inmates are running the asylum' is a common concept and has been the root idea behind several award winning books, plays and films, yet it appears that some ignoramus doesn't like it. And apparently, I'm supposed to know this and understand it in their particular case. Que?
Please, any insights will do. Sooner or later one of you will say something that will help me get a grip on this. You know the one where the more you try, the more you're shaking your head, you're laughing bleakly, you don't know whether to be angry, offended, confused, puch drunk, weakened, disempowered, desperate to understand, shocked, fed up with mods public messages yet again, privacy invaded, and a whole bunch more, and because you can't choose one, you have them all at once instead. That's where I am right now.
Phew! Bit of a maze. Ariadne, the thread!
Parents

  • I'm going to plead with you, Longman, Electra, two people who I have come to regard and respect as friends, mentors and guides, intelligent, reliable, and sharing (I think) my principals. Often stating things better than me, presenting arguments that I could not, in ways that are beyond my skills, and teaching me in the process.

    And when I needed you most, you were there standing at my side, helping and supporting me, as you have others. Unafraid to speak out, (First they came for the  Socialists... Pastor Martin Niemoller) people with strength of character.

    One of my deleted sorry pre-moderated and still being processed posts at the weekend was on this subject (I have a copy on a Word document of every post I've ever made on here) and with the gracious condescention of the NAS, I'll summarise:

    The NAS doesn't care whether we stay or go. They will absolutely refute any responsibility for causing it, saying it's 'your choice'. To prove it's 'your choice', they'll 'value you as a member', 'thank you for your contribution', 'regret that you feel you have to leave' etc etc - the whole armoury of empty phrases that take minimal effort to copy and paste. I've heard them all, so have you, and that's why we judge people by what they do, and not what they say. Have they begged you to stay? Of course not. Have they offered a year's free subscription, a t-shirt, a coaster for your coffee mug as a way to say 'stay'?. Dream on. So how do they show that they 'value' us?

    All of this attitude towards autistic people from the 'leading' autistic charity that calls for us to 'accept difference, not indifference'. Very well NAS, I do not accept your indifference.

    The people who truly value us are our own kind. If we leave, we leave them without our help and support. The only people who are hurt by our leaving are ourselves, the confused and frightened newbies, the seekers, even the occasional parent, and we've had plenty of lovely comments from such people, thanking us for help that they say they've been unable to get from the NAS. Are we to abandon these people?

    Please, and I'm begging you now, please don't. There are few enough of us as it is.

    In my deleted post, I asked if anyone can suggest a website that we can meet up on, and can anyone suggest a particularly good free e-mail provider. I also, incidentaly, tried to accept Electra's offer to meet up on the 5th and asked for a time/location (I don't know the area) and if anyone else could join us?

    Please don't leave, at least until we have an alternative. The NAS aren't going to allow us to exchange contact details (and on this one, I do largely agree with the safeguarding issues) and going now would be like giving the bullies the sand to throw in our faces. And anyway, I'll be lonely without you.

    Anyone heard from KaloJaro?

Reply

  • I'm going to plead with you, Longman, Electra, two people who I have come to regard and respect as friends, mentors and guides, intelligent, reliable, and sharing (I think) my principals. Often stating things better than me, presenting arguments that I could not, in ways that are beyond my skills, and teaching me in the process.

    And when I needed you most, you were there standing at my side, helping and supporting me, as you have others. Unafraid to speak out, (First they came for the  Socialists... Pastor Martin Niemoller) people with strength of character.

    One of my deleted sorry pre-moderated and still being processed posts at the weekend was on this subject (I have a copy on a Word document of every post I've ever made on here) and with the gracious condescention of the NAS, I'll summarise:

    The NAS doesn't care whether we stay or go. They will absolutely refute any responsibility for causing it, saying it's 'your choice'. To prove it's 'your choice', they'll 'value you as a member', 'thank you for your contribution', 'regret that you feel you have to leave' etc etc - the whole armoury of empty phrases that take minimal effort to copy and paste. I've heard them all, so have you, and that's why we judge people by what they do, and not what they say. Have they begged you to stay? Of course not. Have they offered a year's free subscription, a t-shirt, a coaster for your coffee mug as a way to say 'stay'?. Dream on. So how do they show that they 'value' us?

    All of this attitude towards autistic people from the 'leading' autistic charity that calls for us to 'accept difference, not indifference'. Very well NAS, I do not accept your indifference.

    The people who truly value us are our own kind. If we leave, we leave them without our help and support. The only people who are hurt by our leaving are ourselves, the confused and frightened newbies, the seekers, even the occasional parent, and we've had plenty of lovely comments from such people, thanking us for help that they say they've been unable to get from the NAS. Are we to abandon these people?

    Please, and I'm begging you now, please don't. There are few enough of us as it is.

    In my deleted post, I asked if anyone can suggest a website that we can meet up on, and can anyone suggest a particularly good free e-mail provider. I also, incidentaly, tried to accept Electra's offer to meet up on the 5th and asked for a time/location (I don't know the area) and if anyone else could join us?

    Please don't leave, at least until we have an alternative. The NAS aren't going to allow us to exchange contact details (and on this one, I do largely agree with the safeguarding issues) and going now would be like giving the bullies the sand to throw in our faces. And anyway, I'll be lonely without you.

    Anyone heard from KaloJaro?

Children
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