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AS people, please can you help me?

classic codger

I am trying, with great difficulty, to understand something. I could really use your help with this, it's literaly taken me over (you know the one) and I need the thinking of others. Call it an intervention!

Before I begin, please can I ask you to look over the following article?;

nymag.com/.../

I have seen many posts from NT parents about 'treatment' for AS.

The question I have asked myself is, 'if I could go back and be changed into an NT by 'treatment', would I choose it?'

My firm answer is 'No'. I am the sum total of a life spent as an AS person. I can't change my past, so my best option is to use the learning that is  'the sum of who I am' to help others if I can, and especially for the next generation. If any of you think that I can be helpful and supportive, understanding and insightful, fine. If you think the opposite, also fine and I am sorry that I wasn't helpful. I do what everyone does - the best I can.

I'm an egalitarian by instinct. I will state my thoughts and opinions, but they are mine alone. When I read other people's posts, I assume the right to agree or disagree, and simply expect the same fairness back.

Thank you for listening this far, and now I've come to my taxing absorption.

I read this post under the title Stem cell treatment for autism: 'Has anyone undergone stem cell treatment for autism?'

I responded with '

This is my personal opinion. I don't argue my personal opinions, just for them.

How about 'tretament' for being NT? Their capacity for being the most illogical, spiteful, self-destructive creature on this planet leaves me staggered. I pity the poor creatures and their lack of insight, but what can you do? No-one is researching 'treatment' for them, because they collectively agree that their unsanity is 'normal'.

The inmates are running the asylum.

Now, I thought that I was humourously disparaging the idea of 'treating' people just because they are different. It is my belief that most people will be able to see that I have reiterated the concepts of the same thing as the poster, with our roles reversed. Here's your mirror, as it were.
I just discovered that I got moderated for this post . Apparently, I should watch my language. A particular word picked out is asylum because it is derrogatory towards past attitudes to mental health (?).
I am totaly confused. I don't know why 'mental health' is being brought into it. Given the various current uses of the word 'asylum' I don't know how it becomes offensive, even in context, 'the inmates are running the asylum' is a common concept and has been the root idea behind several award winning books, plays and films, yet it appears that some ignoramus doesn't like it. And apparently, I'm supposed to know this and understand it in their particular case. Que?
Please, any insights will do. Sooner or later one of you will say something that will help me get a grip on this. You know the one where the more you try, the more you're shaking your head, you're laughing bleakly, you don't know whether to be angry, offended, confused, puch drunk, weakened, disempowered, desperate to understand, shocked, fed up with mods public messages yet again, privacy invaded, and a whole bunch more, and because you can't choose one, you have them all at once instead. That's where I am right now.
Phew! Bit of a maze. Ariadne, the thread!
Parents
  • Former Member
    Former Member

    How foolish? A couple of people have been puzzled by others  contributions as if they were expecting the behaviour of well mannered folk. I for one have been baffled, exasperated and confused by some of the turns that this thread has taken. It is a puzzle that needs to be solved.

    Actually CC et al exhibit textbook autistic behaviour. They are genuinely confused by the NT behaviour of Bob. They are outraged at the idea of forced cures for their behaviour.  Well, what should we expect of each other here? We should expect everyone to be autistic and not be afraid to identify, and work with, the grain of that behaviour rather than cutting roughcut against the grain.

    I came to the above conclusion whilst reading Neurotribes where I read of one of Asperger's patients who behaved in a frequently rational but extreme manner. The patient wished to abide by rules but was defiant of authority and was picked on by and argumentative with other patients. Such patients are baffling and hard to comprehend from the outside but respond well to be treating with patience and understanding. I recognise this behaviour in myself and others on the forum in greater or lesser extents.

    Just as mention of the word asylum can be misunderstood, I am very clear that my application of this label to CC and others is not a criticism or an insult but actually it is a deeper recognition of the reasons why we are all gathered together in this place.

    It is remarkable, actually, that we rarely identify and describe each others autistic outbursts. We have tried to deal with them as we would deal with a poster on a normal forum. I think we shoud be more open and become critical friends of each other. (Anyone who is unfamiliar with this term should follow the link)

    I hope that Bob and everyone else concerned can see this as a way forward. CC et al do not benefit from the sin bin but need to be engaged in conversation. The doors and windows of their minds need to be thrown open so that they can see out and that they can also see what is inside the minds of other autistic people.

    Please, Bob, let them back in. The forum needs moderation but it needs moderation that recognises and accommodates raw, unpolished autism.

    We come here to understand ourselves and our autism. We need an environment that accepts that and does not unwittingly trample on autistic behaviour when it appears.

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  • Former Member
    Former Member

    How foolish? A couple of people have been puzzled by others  contributions as if they were expecting the behaviour of well mannered folk. I for one have been baffled, exasperated and confused by some of the turns that this thread has taken. It is a puzzle that needs to be solved.

    Actually CC et al exhibit textbook autistic behaviour. They are genuinely confused by the NT behaviour of Bob. They are outraged at the idea of forced cures for their behaviour.  Well, what should we expect of each other here? We should expect everyone to be autistic and not be afraid to identify, and work with, the grain of that behaviour rather than cutting roughcut against the grain.

    I came to the above conclusion whilst reading Neurotribes where I read of one of Asperger's patients who behaved in a frequently rational but extreme manner. The patient wished to abide by rules but was defiant of authority and was picked on by and argumentative with other patients. Such patients are baffling and hard to comprehend from the outside but respond well to be treating with patience and understanding. I recognise this behaviour in myself and others on the forum in greater or lesser extents.

    Just as mention of the word asylum can be misunderstood, I am very clear that my application of this label to CC and others is not a criticism or an insult but actually it is a deeper recognition of the reasons why we are all gathered together in this place.

    It is remarkable, actually, that we rarely identify and describe each others autistic outbursts. We have tried to deal with them as we would deal with a poster on a normal forum. I think we shoud be more open and become critical friends of each other. (Anyone who is unfamiliar with this term should follow the link)

    I hope that Bob and everyone else concerned can see this as a way forward. CC et al do not benefit from the sin bin but need to be engaged in conversation. The doors and windows of their minds need to be thrown open so that they can see out and that they can also see what is inside the minds of other autistic people.

    Please, Bob, let them back in. The forum needs moderation but it needs moderation that recognises and accommodates raw, unpolished autism.

    We come here to understand ourselves and our autism. We need an environment that accepts that and does not unwittingly trample on autistic behaviour when it appears.

Children
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