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AS people, please can you help me?

classic codger

I am trying, with great difficulty, to understand something. I could really use your help with this, it's literaly taken me over (you know the one) and I need the thinking of others. Call it an intervention!

Before I begin, please can I ask you to look over the following article?;

nymag.com/.../

I have seen many posts from NT parents about 'treatment' for AS.

The question I have asked myself is, 'if I could go back and be changed into an NT by 'treatment', would I choose it?'

My firm answer is 'No'. I am the sum total of a life spent as an AS person. I can't change my past, so my best option is to use the learning that is  'the sum of who I am' to help others if I can, and especially for the next generation. If any of you think that I can be helpful and supportive, understanding and insightful, fine. If you think the opposite, also fine and I am sorry that I wasn't helpful. I do what everyone does - the best I can.

I'm an egalitarian by instinct. I will state my thoughts and opinions, but they are mine alone. When I read other people's posts, I assume the right to agree or disagree, and simply expect the same fairness back.

Thank you for listening this far, and now I've come to my taxing absorption.

I read this post under the title Stem cell treatment for autism: 'Has anyone undergone stem cell treatment for autism?'

I responded with '

This is my personal opinion. I don't argue my personal opinions, just for them.

How about 'tretament' for being NT? Their capacity for being the most illogical, spiteful, self-destructive creature on this planet leaves me staggered. I pity the poor creatures and their lack of insight, but what can you do? No-one is researching 'treatment' for them, because they collectively agree that their unsanity is 'normal'.

The inmates are running the asylum.

Now, I thought that I was humourously disparaging the idea of 'treating' people just because they are different. It is my belief that most people will be able to see that I have reiterated the concepts of the same thing as the poster, with our roles reversed. Here's your mirror, as it were.
I just discovered that I got moderated for this post . Apparently, I should watch my language. A particular word picked out is asylum because it is derrogatory towards past attitudes to mental health (?).
I am totaly confused. I don't know why 'mental health' is being brought into it. Given the various current uses of the word 'asylum' I don't know how it becomes offensive, even in context, 'the inmates are running the asylum' is a common concept and has been the root idea behind several award winning books, plays and films, yet it appears that some ignoramus doesn't like it. And apparently, I'm supposed to know this and understand it in their particular case. Que?
Please, any insights will do. Sooner or later one of you will say something that will help me get a grip on this. You know the one where the more you try, the more you're shaking your head, you're laughing bleakly, you don't know whether to be angry, offended, confused, puch drunk, weakened, disempowered, desperate to understand, shocked, fed up with mods public messages yet again, privacy invaded, and a whole bunch more, and because you can't choose one, you have them all at once instead. That's where I am right now.
Phew! Bit of a maze. Ariadne, the thread!
Parents

  • Thank you all for posting such positive messages. I apologise for my earlier post about feeling 'underwhelmed' by the lack of support, I take on board entirely Technophobe's comment about waitng for people to respond.

    I shall take it that you all understand the depth of my distress, how it was caused, and why I thought that my best option was to take myself away from this unnecessary stress. I've thought about it (as if I could have NOT thought about it, LOL!) and here is my response.

    Bob seems to think that it's fine to abuse us, just as long as they issue an apology. I have no idea if SophieMod is AS or not, and it doesn't concern me unduly. I do not blame her, I have no issues towards her personaly, I accept her apology unreservedly. What is regretable, and cannot be taken back, is her original 'moderation' or the effect it had on me. I suffered real and genuine harm, and still am.

    What has helped me enormously to pick my way through the melee is that I have had such good supportive feedback, just as others have had, from AS people who think that I've helped them, speak well on our behalf, and am appreciated for my involvement. I cannot tell you all how much that means to me anyway, but this week, especially.

    I actually felt bad when I was being urged not to leave, because I felt like I was choosing to abandon my community, and the last thing we need is to be disunited. At the rate of 1 in every 100, we are rare people, and we can only rely on each other.

    KaloJaro, your observations are brilliant, please stay with us?

    I'm staying, unless, of course, we collectively decide to leave the NAS. My view is that effective change is brought about by being 'in', not 'out'. One of the major problems we have at the moment is that we cannot network with each other.

    Does anyone have a suggestion as to where we can talk openly and exchange contact details? I would suggest, also, that we each set up a separate e-mail account to keep separate for this purpose only. Again, any suggestions about free e-mail accounts? Come on you IT AS people!

    Electra - as per your suggestion, I'd like to meet you on the 5th, do you have a suggested time/location? Anyone else care to join in?

Reply

  • Thank you all for posting such positive messages. I apologise for my earlier post about feeling 'underwhelmed' by the lack of support, I take on board entirely Technophobe's comment about waitng for people to respond.

    I shall take it that you all understand the depth of my distress, how it was caused, and why I thought that my best option was to take myself away from this unnecessary stress. I've thought about it (as if I could have NOT thought about it, LOL!) and here is my response.

    Bob seems to think that it's fine to abuse us, just as long as they issue an apology. I have no idea if SophieMod is AS or not, and it doesn't concern me unduly. I do not blame her, I have no issues towards her personaly, I accept her apology unreservedly. What is regretable, and cannot be taken back, is her original 'moderation' or the effect it had on me. I suffered real and genuine harm, and still am.

    What has helped me enormously to pick my way through the melee is that I have had such good supportive feedback, just as others have had, from AS people who think that I've helped them, speak well on our behalf, and am appreciated for my involvement. I cannot tell you all how much that means to me anyway, but this week, especially.

    I actually felt bad when I was being urged not to leave, because I felt like I was choosing to abandon my community, and the last thing we need is to be disunited. At the rate of 1 in every 100, we are rare people, and we can only rely on each other.

    KaloJaro, your observations are brilliant, please stay with us?

    I'm staying, unless, of course, we collectively decide to leave the NAS. My view is that effective change is brought about by being 'in', not 'out'. One of the major problems we have at the moment is that we cannot network with each other.

    Does anyone have a suggestion as to where we can talk openly and exchange contact details? I would suggest, also, that we each set up a separate e-mail account to keep separate for this purpose only. Again, any suggestions about free e-mail accounts? Come on you IT AS people!

    Electra - as per your suggestion, I'd like to meet you on the 5th, do you have a suggested time/location? Anyone else care to join in?

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