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AS people, please can you help me?

classic codger

I am trying, with great difficulty, to understand something. I could really use your help with this, it's literaly taken me over (you know the one) and I need the thinking of others. Call it an intervention!

Before I begin, please can I ask you to look over the following article?;

nymag.com/.../

I have seen many posts from NT parents about 'treatment' for AS.

The question I have asked myself is, 'if I could go back and be changed into an NT by 'treatment', would I choose it?'

My firm answer is 'No'. I am the sum total of a life spent as an AS person. I can't change my past, so my best option is to use the learning that is  'the sum of who I am' to help others if I can, and especially for the next generation. If any of you think that I can be helpful and supportive, understanding and insightful, fine. If you think the opposite, also fine and I am sorry that I wasn't helpful. I do what everyone does - the best I can.

I'm an egalitarian by instinct. I will state my thoughts and opinions, but they are mine alone. When I read other people's posts, I assume the right to agree or disagree, and simply expect the same fairness back.

Thank you for listening this far, and now I've come to my taxing absorption.

I read this post under the title Stem cell treatment for autism: 'Has anyone undergone stem cell treatment for autism?'

I responded with '

This is my personal opinion. I don't argue my personal opinions, just for them.

How about 'tretament' for being NT? Their capacity for being the most illogical, spiteful, self-destructive creature on this planet leaves me staggered. I pity the poor creatures and their lack of insight, but what can you do? No-one is researching 'treatment' for them, because they collectively agree that their unsanity is 'normal'.

The inmates are running the asylum.

Now, I thought that I was humourously disparaging the idea of 'treating' people just because they are different. It is my belief that most people will be able to see that I have reiterated the concepts of the same thing as the poster, with our roles reversed. Here's your mirror, as it were.
I just discovered that I got moderated for this post . Apparently, I should watch my language. A particular word picked out is asylum because it is derrogatory towards past attitudes to mental health (?).
I am totaly confused. I don't know why 'mental health' is being brought into it. Given the various current uses of the word 'asylum' I don't know how it becomes offensive, even in context, 'the inmates are running the asylum' is a common concept and has been the root idea behind several award winning books, plays and films, yet it appears that some ignoramus doesn't like it. And apparently, I'm supposed to know this and understand it in their particular case. Que?
Please, any insights will do. Sooner or later one of you will say something that will help me get a grip on this. You know the one where the more you try, the more you're shaking your head, you're laughing bleakly, you don't know whether to be angry, offended, confused, puch drunk, weakened, disempowered, desperate to understand, shocked, fed up with mods public messages yet again, privacy invaded, and a whole bunch more, and because you can't choose one, you have them all at once instead. That's where I am right now.
Phew! Bit of a maze. Ariadne, the thread!
Parents

  • Technophobe, this blatent censorship and lack of support (and coverage of issues endured by) for adults on the spectrum is why I and at least two others I know of with ASD have issues with the forum. Thankfully I subscribe to posts so got to see this blatent censorship in action.

    Whoever posted this, please state your name as I'd like to know who else we have lost....

    The reply was to the discussion 'AS people, please can you help me?'

    Here’s the reply -
    "

    The forum I feel has a current problem, how NAS perceives it.

    There
    was an article in "Your Autism magazine" Winter 2015 "Spotlight on our online
    Community - How the NAS can help you". The article seemed to me astonishingly
    patronising, and I quote from the central paragraph:

    "What kind of
    problems do people post about most often? It's not all problems (people have
    a laugh too) and we are not sure therre is a most asked question. Right now
    someone is asking why their son won't wash or use deoderant; someone is
    talking about losing their job through discrimination and somone is
    discussing their love of cup cake baking. We never know what will pop up
    next"

    Given the issues prevailing at the time, where we are being
    inundated with cries for help from desperate people, this is utter nonsense.
    And I searched and searched and couldn't find any mention of cup cake
    baking

    However, in my opinion, NAS has appointed Bob to clean up the
    forum in case it harms funding appeals or some such. The article also has
    this quote from Bob, (who stated two postings back on this thread that "I am
    not convinced your assertions are shared by the majority of members". In the
    article Bob says:

    "I have often been moved by the honesty and courage
    of community members"

    Not the way it comes over, Bob.

    We did have
    a period in  December when many regulars stopped posting and some
    promises were made by Bob, none of which have been fulfilled"

    ((Next post by the same individual I presume))

    The reply was to the discussion 'AS people, please can you help me?'

    Here’s the reply -
    "

    It seems my attempt to reply was suspended.

    I will no longer post
    on here. I have had enough. I will also put in a complaint and will withdraw
    my membership of NAS.

    If this is also suspended that is the end of my
    support for NAS for all time"

    ((And the very last))

    The reply was to the discussion 'AS people, please can you help me?'

    Here’s the reply -
    "

    In the light of the double suspension, I will withdraw my membership of
    NAS. I want my three postings show to the director of NAS immediately"

Reply

  • Technophobe, this blatent censorship and lack of support (and coverage of issues endured by) for adults on the spectrum is why I and at least two others I know of with ASD have issues with the forum. Thankfully I subscribe to posts so got to see this blatent censorship in action.

    Whoever posted this, please state your name as I'd like to know who else we have lost....

    The reply was to the discussion 'AS people, please can you help me?'

    Here’s the reply -
    "

    The forum I feel has a current problem, how NAS perceives it.

    There
    was an article in "Your Autism magazine" Winter 2015 "Spotlight on our online
    Community - How the NAS can help you". The article seemed to me astonishingly
    patronising, and I quote from the central paragraph:

    "What kind of
    problems do people post about most often? It's not all problems (people have
    a laugh too) and we are not sure therre is a most asked question. Right now
    someone is asking why their son won't wash or use deoderant; someone is
    talking about losing their job through discrimination and somone is
    discussing their love of cup cake baking. We never know what will pop up
    next"

    Given the issues prevailing at the time, where we are being
    inundated with cries for help from desperate people, this is utter nonsense.
    And I searched and searched and couldn't find any mention of cup cake
    baking

    However, in my opinion, NAS has appointed Bob to clean up the
    forum in case it harms funding appeals or some such. The article also has
    this quote from Bob, (who stated two postings back on this thread that "I am
    not convinced your assertions are shared by the majority of members". In the
    article Bob says:

    "I have often been moved by the honesty and courage
    of community members"

    Not the way it comes over, Bob.

    We did have
    a period in  December when many regulars stopped posting and some
    promises were made by Bob, none of which have been fulfilled"

    ((Next post by the same individual I presume))

    The reply was to the discussion 'AS people, please can you help me?'

    Here’s the reply -
    "

    It seems my attempt to reply was suspended.

    I will no longer post
    on here. I have had enough. I will also put in a complaint and will withdraw
    my membership of NAS.

    If this is also suspended that is the end of my
    support for NAS for all time"

    ((And the very last))

    The reply was to the discussion 'AS people, please can you help me?'

    Here’s the reply -
    "

    In the light of the double suspension, I will withdraw my membership of
    NAS. I want my three postings show to the director of NAS immediately"

Children
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