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AS people, please can you help me?

classic codger

I am trying, with great difficulty, to understand something. I could really use your help with this, it's literaly taken me over (you know the one) and I need the thinking of others. Call it an intervention!

Before I begin, please can I ask you to look over the following article?;

nymag.com/.../

I have seen many posts from NT parents about 'treatment' for AS.

The question I have asked myself is, 'if I could go back and be changed into an NT by 'treatment', would I choose it?'

My firm answer is 'No'. I am the sum total of a life spent as an AS person. I can't change my past, so my best option is to use the learning that is  'the sum of who I am' to help others if I can, and especially for the next generation. If any of you think that I can be helpful and supportive, understanding and insightful, fine. If you think the opposite, also fine and I am sorry that I wasn't helpful. I do what everyone does - the best I can.

I'm an egalitarian by instinct. I will state my thoughts and opinions, but they are mine alone. When I read other people's posts, I assume the right to agree or disagree, and simply expect the same fairness back.

Thank you for listening this far, and now I've come to my taxing absorption.

I read this post under the title Stem cell treatment for autism: 'Has anyone undergone stem cell treatment for autism?'

I responded with '

This is my personal opinion. I don't argue my personal opinions, just for them.

How about 'tretament' for being NT? Their capacity for being the most illogical, spiteful, self-destructive creature on this planet leaves me staggered. I pity the poor creatures and their lack of insight, but what can you do? No-one is researching 'treatment' for them, because they collectively agree that their unsanity is 'normal'.

The inmates are running the asylum.

Now, I thought that I was humourously disparaging the idea of 'treating' people just because they are different. It is my belief that most people will be able to see that I have reiterated the concepts of the same thing as the poster, with our roles reversed. Here's your mirror, as it were.
I just discovered that I got moderated for this post . Apparently, I should watch my language. A particular word picked out is asylum because it is derrogatory towards past attitudes to mental health (?).
I am totaly confused. I don't know why 'mental health' is being brought into it. Given the various current uses of the word 'asylum' I don't know how it becomes offensive, even in context, 'the inmates are running the asylum' is a common concept and has been the root idea behind several award winning books, plays and films, yet it appears that some ignoramus doesn't like it. And apparently, I'm supposed to know this and understand it in their particular case. Que?
Please, any insights will do. Sooner or later one of you will say something that will help me get a grip on this. You know the one where the more you try, the more you're shaking your head, you're laughing bleakly, you don't know whether to be angry, offended, confused, puch drunk, weakened, disempowered, desperate to understand, shocked, fed up with mods public messages yet again, privacy invaded, and a whole bunch more, and because you can't choose one, you have them all at once instead. That's where I am right now.
Phew! Bit of a maze. Ariadne, the thread!
Parents

  • I'm glad if what I said helped. I was cross that you'd been made so distressed.

    I'm sorry you're leaving but this is not a healthy place for autistic adults to be. NAS call it a community but thats very far from the truth. As far a i can tell the posters fall into one of several groups

    1  Yet another student wanting to mine our life experiences to help them get a qualification

    2  Parents in a panic after problems with an autistic child or problems with the medical profession

    3  Younger people seeking autistic friends - these quickly leave as this isn't a supportive place

    4  Older autistic people who offer advice and support where they can.

    For this to be a community we should have a safe space to log on where we don't have to see research posts or posts from parents apalled that their child is like us. We should have space to support each other.

    For all of us our daily life is hard, sometimes almost unbearable and not because we're autistic but because the world is not set up for us. This is one place that should be set up for us, should be safe for us. NAS should not be using us as sources of support for NT people when we have so little support ourselves. Its first duty should be to us or it should drop the National out of its name.

Reply

  • I'm glad if what I said helped. I was cross that you'd been made so distressed.

    I'm sorry you're leaving but this is not a healthy place for autistic adults to be. NAS call it a community but thats very far from the truth. As far a i can tell the posters fall into one of several groups

    1  Yet another student wanting to mine our life experiences to help them get a qualification

    2  Parents in a panic after problems with an autistic child or problems with the medical profession

    3  Younger people seeking autistic friends - these quickly leave as this isn't a supportive place

    4  Older autistic people who offer advice and support where they can.

    For this to be a community we should have a safe space to log on where we don't have to see research posts or posts from parents apalled that their child is like us. We should have space to support each other.

    For all of us our daily life is hard, sometimes almost unbearable and not because we're autistic but because the world is not set up for us. This is one place that should be set up for us, should be safe for us. NAS should not be using us as sources of support for NT people when we have so little support ourselves. Its first duty should be to us or it should drop the National out of its name.

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