Should i make my asd child move to a smaller house and share a bedroom?

Hi all, Just looking for advice as feeling really alone and unsure at the moment. I am a mum of 4. One of my ds has asd and my youngest dd is currently being assessed. For the last two years I have been ill with seizures due to a condition known as NEAD and these seizures get worse with stress. We currently live in a 4 bed house which allowed my ds to have his own room where he could go and calm down. I lost my job last year due to my illness and whilst getting better I am looking to the future and waht is to come for 2016 such as hopefully returning to work. I was in a high managerial role as a head of department which paid the rent comfortably for our 4 bed home. Unfortunately I wont be able to take on such a high pad job for a while due to my condition so I am concerned when i get a job I will no longer have any houisng benefit to help with the cost of rent. With our budget already tight I fear we would not be able to afford to live here anymore.  I have gone on the council waiting listing but getting a 4 bed council house is looking very unlikely and there is a 3 bed that we could move to soon on the council scheme but Im worried that I will be doing harm to my family by forcing the boys to share and my daughters to share a room too? The worries have been building up leading to an increase in my seizures the size of the house is also proving expensive to heat and power too. Im just not sure what is the best to do for my family we are already in debt due to my job loss last year and cant see the wood from the trees. Any thoughst on this kind of situation would be grateful my asd ds in 10 in march so I know adolescence is on the horizon too?  Do any of you have childrne that share ok with asd???

Parents
  • Former Member
    Former Member

    (It seems that DS = darling/dear son rather than disabled son which is what I guessed it meant. )

    I wonder whether DLA would apply to your son. I don't know if he is affected enough to qualify. http://www.autism.org.uk/about/benefits-care/benefits/children.aspx This might help contribute to the additional costs of having a 4 bed home.

    I also wonder whether your NEAD is at all related to the meltdown attacks that some people with AS have. I'm guessing there is a spectrum of severity which might span a loss of control or meltdown to something that looked more like an epileptic seizure. Do you think you or your partner have autistic tendencies (AS is often inherited so this is a possibility partiularly if a sibling is also affected)

Reply
  • Former Member
    Former Member

    (It seems that DS = darling/dear son rather than disabled son which is what I guessed it meant. )

    I wonder whether DLA would apply to your son. I don't know if he is affected enough to qualify. http://www.autism.org.uk/about/benefits-care/benefits/children.aspx This might help contribute to the additional costs of having a 4 bed home.

    I also wonder whether your NEAD is at all related to the meltdown attacks that some people with AS have. I'm guessing there is a spectrum of severity which might span a loss of control or meltdown to something that looked more like an epileptic seizure. Do you think you or your partner have autistic tendencies (AS is often inherited so this is a possibility partiularly if a sibling is also affected)

Children
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