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frustrated

asparagus

Hello

Just seen the events page and the advert for National Autism week in Schools.

I am an adult with Autism and there virtually no information out there for us. I guess it is assumed either it don't exist in adults or that we have learned our ways of coping by time we are adults.

But more adults are being diagnosed on the ASD Spectrum. But nothing out there for us to tap into. We stumble through

How about a National Autism/ASD week or Day for Adults on the ASD Spectrum - especially for those who only been diagnosed in their adulthood.

Please since this is a people community board I hope someone from National Autism Society is seeing this and start to change things regarding help for adults diagnosed with Autism. Lots of books and DVD's for families and the younger end but what is there for the older end. Just one little article in the journal about those reaching pension age and the changes they may have to make. 

Tired of everything about children - not that am tired of children don't misunderstand me, but there is nothing much to help us.

Rant over but hopefullly someone is reading who can help  hopefully someone will delete this one as duplicated for some technical reason thanks

Parents

  • Agreed.  As an adult woman with recently diagnosed Aspergers I am angry and frustrated by the lack of information and support available to us.  The ignorance I have experienced, even from Autism "experts" has been astounding.  I quit my last (extremely specialist, not IT lol) job, mainly because I couldn't get the right reasonable adjustments.  This was partly my fault, I didn't know what would help, but my kind boss even looked on this site for guidance and struggled to understand my situation.  Other people started treating me like I was suddenly stupid and infantalised  me (2 degrees, masters) after doing a it of research.  

    I appreciate  that parents are trying to do the best for their kids but they also will grow up.  I am aware that there are lots of adults being diagnosed in adulthood - it would be extremely helpful to raise awareness of this.  I am pretty sick of seeing everything being directed at parents, oh, and their kids.  Social skills training for adults using photos of adults would be a good start.  I don't have kids and dont interact with them so this doesn't help me.  I agree that I am fed up with hearing things from a third party perspective of parents or "professionals".  There is an abundance of intelligent aspies with a wealth of experience to offer.  I don't want to hear an outsiders interpretation of what they think it would be like to be on the spectrum. 

    The only service I was directed to by the Nhs in my area was a social club that was boasting of its recent purchase of a Nintendo wii.  I'm pretty sure, I'm not in their target demographic.  whatever their good intentions, this would also not help me to interpret depression and anxiety caused by the difficulties in everyday living I experience.  

    well said asparagus and lumos.

Reply

  • Agreed.  As an adult woman with recently diagnosed Aspergers I am angry and frustrated by the lack of information and support available to us.  The ignorance I have experienced, even from Autism "experts" has been astounding.  I quit my last (extremely specialist, not IT lol) job, mainly because I couldn't get the right reasonable adjustments.  This was partly my fault, I didn't know what would help, but my kind boss even looked on this site for guidance and struggled to understand my situation.  Other people started treating me like I was suddenly stupid and infantalised  me (2 degrees, masters) after doing a it of research.  

    I appreciate  that parents are trying to do the best for their kids but they also will grow up.  I am aware that there are lots of adults being diagnosed in adulthood - it would be extremely helpful to raise awareness of this.  I am pretty sick of seeing everything being directed at parents, oh, and their kids.  Social skills training for adults using photos of adults would be a good start.  I don't have kids and dont interact with them so this doesn't help me.  I agree that I am fed up with hearing things from a third party perspective of parents or "professionals".  There is an abundance of intelligent aspies with a wealth of experience to offer.  I don't want to hear an outsiders interpretation of what they think it would be like to be on the spectrum. 

    The only service I was directed to by the Nhs in my area was a social club that was boasting of its recent purchase of a Nintendo wii.  I'm pretty sure, I'm not in their target demographic.  whatever their good intentions, this would also not help me to interpret depression and anxiety caused by the difficulties in everyday living I experience.  

    well said asparagus and lumos.

Children
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