whenever we get on of these college or Uni students wanting us to fill out a surveymonkey we could fill in their surveys with utter nonsense?what do you think??
Parents
Former Member
Hi Longman,
I hope that this thread has made a difference to NAS - the input from Bob shows that some real listening is taking place. Probably more reaction from NAS than any other thread I have read here in the last 18 months.
The feelings that you have expressed about the way that NAS have treated the forum has lead to a much greater understanding of its true role in the front line of diagnosis and treatment. Others have spoken out about their perception and the stand you have taken has, I think, resulted in some movement. The discussion has covered a lot of ground and I for one have a much deeper appreciation of what the forum currently does and what it could do. It certainly isn't perfect but I think that the discussion has clarified and crystallised some of the very real issues that need to be resolved. You should take a lot of credit for bringing this discussion to a head.
KaloJaro's contribution shows that your knowledge and contributions really are valued. Nobody is as widely read and experienced, on the forum, as you.
I think your post above and the reference to being punch drunk shows that it is taking a toll. No-one can fix all of these problems on their own. We can only do our best and try and improve and refine what we advise but there is no point letting it getting to you. Sometimes you really do have to look after number one - I'm aware of the irony of that advice on an autism forum when it sometimes makes more sense to say "it isn't all about you!" - something that has been said to me a few times.
I hope that this thread has made a difference to NAS - the input from Bob shows that some real listening is taking place. Probably more reaction from NAS than any other thread I have read here in the last 18 months.
The feelings that you have expressed about the way that NAS have treated the forum has lead to a much greater understanding of its true role in the front line of diagnosis and treatment. Others have spoken out about their perception and the stand you have taken has, I think, resulted in some movement. The discussion has covered a lot of ground and I for one have a much deeper appreciation of what the forum currently does and what it could do. It certainly isn't perfect but I think that the discussion has clarified and crystallised some of the very real issues that need to be resolved. You should take a lot of credit for bringing this discussion to a head.
KaloJaro's contribution shows that your knowledge and contributions really are valued. Nobody is as widely read and experienced, on the forum, as you.
I think your post above and the reference to being punch drunk shows that it is taking a toll. No-one can fix all of these problems on their own. We can only do our best and try and improve and refine what we advise but there is no point letting it getting to you. Sometimes you really do have to look after number one - I'm aware of the irony of that advice on an autism forum when it sometimes makes more sense to say "it isn't all about you!" - something that has been said to me a few times.
