An idea

whenever we get on of these college or Uni students wanting us to fill out a surveymonkey we could fill in their surveys with utter nonsense?what do you think??
Parents
  • I agree Bob C-Mod has summarised the main concerns, but I feel there is something more crucial here. I do wonder if NAS realises what we've got here.

    Daily people post on this forum with significant concerns, distress and helplessness. They usually get answers from forum members sharing their insight and experience and re-assurance.

    I greatly appreciate KatJackKev's reassurance to me that my attempts help - I feel dreadfully inadequate most of the time. I think it worth quoting KatJackKev's last sentence:

    "You may get it wrong, so might anyone, but often when people reach out in desperation it is cathartic just to have that communication with someone who is trying to help, which is what the forum offers".

    For some reason we get lots of people posting desperate for help. If they are coming to the forum for this, is the forum taking the brunt of help requests?

    I don't know what happens on the help line. For all I know they are referred to the website, the same way as the Mods do here. But preasumably your helpline operators are trained - we aren't. Presumably your helpline operators get stress counselling, we don't.

    Although activity in the last fortnight has plummetted, in the normal way of things this forum is very busy, with people sharing their insight and helping others, and it is reassuring that it is recovering, with the regulars once again offering help to others.

    You talk about starter sites and oldies and newbies as if all this forum is is a chat room.  It was strange to read in the article that a typical posting was someone discussing baking cupcakes.

    What goes on in this forum is the front line in autism help. And you plain just don't know it.

Reply
  • I agree Bob C-Mod has summarised the main concerns, but I feel there is something more crucial here. I do wonder if NAS realises what we've got here.

    Daily people post on this forum with significant concerns, distress and helplessness. They usually get answers from forum members sharing their insight and experience and re-assurance.

    I greatly appreciate KatJackKev's reassurance to me that my attempts help - I feel dreadfully inadequate most of the time. I think it worth quoting KatJackKev's last sentence:

    "You may get it wrong, so might anyone, but often when people reach out in desperation it is cathartic just to have that communication with someone who is trying to help, which is what the forum offers".

    For some reason we get lots of people posting desperate for help. If they are coming to the forum for this, is the forum taking the brunt of help requests?

    I don't know what happens on the help line. For all I know they are referred to the website, the same way as the Mods do here. But preasumably your helpline operators are trained - we aren't. Presumably your helpline operators get stress counselling, we don't.

    Although activity in the last fortnight has plummetted, in the normal way of things this forum is very busy, with people sharing their insight and helping others, and it is reassuring that it is recovering, with the regulars once again offering help to others.

    You talk about starter sites and oldies and newbies as if all this forum is is a chat room.  It was strange to read in the article that a typical posting was someone discussing baking cupcakes.

    What goes on in this forum is the front line in autism help. And you plain just don't know it.

Children
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