Hi recombinantsocks. Thanks for your response, it's great to hear another user's perspective.
This forum should facilitate a sensible number of responses should these surveys be more freely allowed. Even if it does not, it isn't our problem as we are not the people needing the data. We are, however, the people who would ultimately benefit from the advances that could be made on the back of data collection.
While I do understand your point about vulnerable users, I find this type of hard line approach to totally contradict the values of fostering independence and freedom of choice. Safeguarding is one thing, censorship on the basis of disability is another...
I am unsure how even the worst designed of surveys could actively endanger a person, perhaps you could offer a realistic scenario, or better yet an example of when this has occurred?
Again, misleading results are not our problem. We are not teaching these researchers our data collection values. We are being offered the option to participate. I would say that a few informed responses would not actually yield misleading results any more than, for example, surveying people online through any other forum. Perhaps they are after qualitative data? Even quantitative data can be collected accurately through a small set of responses if questions are well structured. But we digress, as we are not the ones researching...
No, the fact that I don't get it does not make it wrong. It does suggest a certain amount of obscurity though, especially as I'm not the only user to raise the issue -- perhaps you could explain some of these real reasons that others understand in a bit more detail, aside from the vulnerability risk (which you have already highlighted)? I'm sure I'm just missing the obvious, happy to be educated by others with a greater understanding.
I had understood that by commenting on here and sharing my feelings, I am potentially making my representation to NAS known? I'm sure, as you suggest, moderators are present on the forum.
It is one thing to enforce sensible guidelines, as the hardworking admins do, but quite another to react with disproportionate negativity to a reasonable request and the discussion of others.
Hi recombinantsocks. Thanks for your response, it's great to hear another user's perspective.
This forum should facilitate a sensible number of responses should these surveys be more freely allowed. Even if it does not, it isn't our problem as we are not the people needing the data. We are, however, the people who would ultimately benefit from the advances that could be made on the back of data collection.
While I do understand your point about vulnerable users, I find this type of hard line approach to totally contradict the values of fostering independence and freedom of choice. Safeguarding is one thing, censorship on the basis of disability is another...
I am unsure how even the worst designed of surveys could actively endanger a person, perhaps you could offer a realistic scenario, or better yet an example of when this has occurred?
Again, misleading results are not our problem. We are not teaching these researchers our data collection values. We are being offered the option to participate. I would say that a few informed responses would not actually yield misleading results any more than, for example, surveying people online through any other forum. Perhaps they are after qualitative data? Even quantitative data can be collected accurately through a small set of responses if questions are well structured. But we digress, as we are not the ones researching...
No, the fact that I don't get it does not make it wrong. It does suggest a certain amount of obscurity though, especially as I'm not the only user to raise the issue -- perhaps you could explain some of these real reasons that others understand in a bit more detail, aside from the vulnerability risk (which you have already highlighted)? I'm sure I'm just missing the obvious, happy to be educated by others with a greater understanding.
I had understood that by commenting on here and sharing my feelings, I am potentially making my representation to NAS known? I'm sure, as you suggest, moderators are present on the forum.
It is one thing to enforce sensible guidelines, as the hardworking admins do, but quite another to react with disproportionate negativity to a reasonable request and the discussion of others.
