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Adult autism- how to get diagnosis?

happispirit

Hi,

I have 5 children 15, 13, 7, 5 and 3 and my oldest has been diagnosed as being within the ASD spectrum and in attendance at a SEN school,  with the second currently under Community Paedeatricians wwith a referral to CAMHS as its suspected she is on the spectrum as well.

My husband, (40), also displays a lot of the same behavioural traits and after being on anti depressants for over 4 years, we finally got a referral to the mental health team who basically have said, yes it could be your ASD but your old, we can't really say so easily, and discharged him. 

After such a long slog trying to get him some help, I am buckling under the pressure trying to cope with him, 5 kids and a degree course fulltime. Noone gets PIP, disability allowance, carers allowance or ESA - I would appreciate any advice on how to get his needs recognised and find some support. 

Thank you. 

Parents

  • Hi 'socks

    Apologies, but I'd have to betray some confidential information to qualify that statement, but I'm sure you'll understand that I can't really breach the trust. I'll withdraw the comment if you can't accept it on faith. This person will be reading these pages, and I would be in danger of causing them great anguish if I gave any more details, because they would undoubtedly recognise theirself.

    I think you've got it when you ask 'were they gaming the answers?'. Yes, I believe so. You are correct of course - a high score indicates AS, but for me, that also leaves the possibility that a low score doesn't necessarily indicate an absence of AS.

    I say this because the person has adopted many 'masking' behaviours, and because I've known this person for a very long time. I was honestly able to put my hand on my heart and tell them that their answers did not accord with their reality, and when I gave examples, they readily agreed, much to my surprise I have to say.

    This person is female, and having read what women have to say about themselves on these pages has given me greater understanding of, and compassion for, her behaviours and masking tactics. I would hope that AS woman reading this might possibly understand what I'm saying a lot easier than blokes will. Questions or comments, please ladies?

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  • Hi 'socks

    Apologies, but I'd have to betray some confidential information to qualify that statement, but I'm sure you'll understand that I can't really breach the trust. I'll withdraw the comment if you can't accept it on faith. This person will be reading these pages, and I would be in danger of causing them great anguish if I gave any more details, because they would undoubtedly recognise theirself.

    I think you've got it when you ask 'were they gaming the answers?'. Yes, I believe so. You are correct of course - a high score indicates AS, but for me, that also leaves the possibility that a low score doesn't necessarily indicate an absence of AS.

    I say this because the person has adopted many 'masking' behaviours, and because I've known this person for a very long time. I was honestly able to put my hand on my heart and tell them that their answers did not accord with their reality, and when I gave examples, they readily agreed, much to my surprise I have to say.

    This person is female, and having read what women have to say about themselves on these pages has given me greater understanding of, and compassion for, her behaviours and masking tactics. I would hope that AS woman reading this might possibly understand what I'm saying a lot easier than blokes will. Questions or comments, please ladies?

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