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Adult autism- how to get diagnosis?

happispirit

Hi,

I have 5 children 15, 13, 7, 5 and 3 and my oldest has been diagnosed as being within the ASD spectrum and in attendance at a SEN school,  with the second currently under Community Paedeatricians wwith a referral to CAMHS as its suspected she is on the spectrum as well.

My husband, (40), also displays a lot of the same behavioural traits and after being on anti depressants for over 4 years, we finally got a referral to the mental health team who basically have said, yes it could be your ASD but your old, we can't really say so easily, and discharged him. 

After such a long slog trying to get him some help, I am buckling under the pressure trying to cope with him, 5 kids and a degree course fulltime. Noone gets PIP, disability allowance, carers allowance or ESA - I would appreciate any advice on how to get his needs recognised and find some support. 

Thank you. 

Parents
  • Former Member
    Former Member

    A score of 42 leaves very little room for doubt. Equally, it doesn't mean that he should be disabled by it. I score 40-42 and my life has been affected but not blighted by the condition.

    It would be good if he can understand that knowing that he has the condition can be a positive revelation. I felt a tremendous relief when the diagnosis was confirmed as it meant that I had an explanation and that there was a way forward.

    What does he think about the situation?

    I found that reading the Valerie Gaus book made so much sense to me (I read this before diagnosis) that I was more able to accept that a diagnosis was more likely and that it was possible to have a positive and fulfilled life with the condition.

    Undiagnosed people with the condition can be abusive and also have poor prospects of maintaining their marriages. The social costs of nondiagnosis can be enormous.

    What does your GP say about the situation? Does the GP know anything about autism in adults? If not then it may be worth finding a GP that does understand it.

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  • Former Member
    Former Member

    A score of 42 leaves very little room for doubt. Equally, it doesn't mean that he should be disabled by it. I score 40-42 and my life has been affected but not blighted by the condition.

    It would be good if he can understand that knowing that he has the condition can be a positive revelation. I felt a tremendous relief when the diagnosis was confirmed as it meant that I had an explanation and that there was a way forward.

    What does he think about the situation?

    I found that reading the Valerie Gaus book made so much sense to me (I read this before diagnosis) that I was more able to accept that a diagnosis was more likely and that it was possible to have a positive and fulfilled life with the condition.

    Undiagnosed people with the condition can be abusive and also have poor prospects of maintaining their marriages. The social costs of nondiagnosis can be enormous.

    What does your GP say about the situation? Does the GP know anything about autism in adults? If not then it may be worth finding a GP that does understand it.

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