Adult autism- how to get diagnosis?

Hi,

I have 5 children 15, 13, 7, 5 and 3 and my oldest has been diagnosed as being within the ASD spectrum and in attendance at a SEN school,  with the second currently under Community Paedeatricians wwith a referral to CAMHS as its suspected she is on the spectrum as well.

My husband, (40), also displays a lot of the same behavioural traits and after being on anti depressants for over 4 years, we finally got a referral to the mental health team who basically have said, yes it could be your ASD but your old, we can't really say so easily, and discharged him. 

After such a long slog trying to get him some help, I am buckling under the pressure trying to cope with him, 5 kids and a degree course fulltime. Noone gets PIP, disability allowance, carers allowance or ESA - I would appreciate any advice on how to get his needs recognised and find some support. 

Thank you. 

Parents
  • As Adults I am very much dependent on those who are willing to help.  People who put me down, am learning to walk away from. People who help me to feel good, am learning to accept them. They are able to help me in the way I need the help as and when, not just that am being stubborn or awkward or moody or, but something else is really happening and life for me has improved with a formal diagnosis. Am not talking about financially, as that is a different story but personal well being and feeling good has been a lot better. I kind of depend on others for feeling good but working out who will help me and who likes to exercise their limited power by being authoritative, I walk away from as they are not helping but good at putting one down and not helpful. But one doesnt need a diagnosis for that officially but it has made an enorumous different being able to say am autistic.

Reply
  • As Adults I am very much dependent on those who are willing to help.  People who put me down, am learning to walk away from. People who help me to feel good, am learning to accept them. They are able to help me in the way I need the help as and when, not just that am being stubborn or awkward or moody or, but something else is really happening and life for me has improved with a formal diagnosis. Am not talking about financially, as that is a different story but personal well being and feeling good has been a lot better. I kind of depend on others for feeling good but working out who will help me and who likes to exercise their limited power by being authoritative, I walk away from as they are not helping but good at putting one down and not helpful. But one doesnt need a diagnosis for that officially but it has made an enorumous different being able to say am autistic.

Children
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