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Adult autism- how to get diagnosis?

happispirit

Hi,

I have 5 children 15, 13, 7, 5 and 3 and my oldest has been diagnosed as being within the ASD spectrum and in attendance at a SEN school,  with the second currently under Community Paedeatricians wwith a referral to CAMHS as its suspected she is on the spectrum as well.

My husband, (40), also displays a lot of the same behavioural traits and after being on anti depressants for over 4 years, we finally got a referral to the mental health team who basically have said, yes it could be your ASD but your old, we can't really say so easily, and discharged him. 

After such a long slog trying to get him some help, I am buckling under the pressure trying to cope with him, 5 kids and a degree course fulltime. Noone gets PIP, disability allowance, carers allowance or ESA - I would appreciate any advice on how to get his needs recognised and find some support. 

Thank you. 

Parents

  • Can I suggest you write to local MP and put the whole situation to them?

    I guess I was very lucky at 45 both my parents are still alive and sound and my mum came with me to the first diagnosis session. She also had to fill out a 'questionaire' about my childhood days. And I have plenty of other health issues to help confuse the situation for them.  The second session was spent 'at play'.

    The MP may not be able to do anything but they can influence people more than they may realise but when they start sending out letters to organisations asking what is happening with the pacific case, that can at least make them answerable for their actions why your husband keeps falling through the net as it 'were'. It may be they haven't the capacity to meet the needs of someone who don't go out, but they should simply say so rather than cover it up. Do what they can to actually help rather the write them off. 

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  • Can I suggest you write to local MP and put the whole situation to them?

    I guess I was very lucky at 45 both my parents are still alive and sound and my mum came with me to the first diagnosis session. She also had to fill out a 'questionaire' about my childhood days. And I have plenty of other health issues to help confuse the situation for them.  The second session was spent 'at play'.

    The MP may not be able to do anything but they can influence people more than they may realise but when they start sending out letters to organisations asking what is happening with the pacific case, that can at least make them answerable for their actions why your husband keeps falling through the net as it 'were'. It may be they haven't the capacity to meet the needs of someone who don't go out, but they should simply say so rather than cover it up. Do what they can to actually help rather the write them off. 

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