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Adult autism- how to get diagnosis?

happispirit

Hi,

I have 5 children 15, 13, 7, 5 and 3 and my oldest has been diagnosed as being within the ASD spectrum and in attendance at a SEN school,  with the second currently under Community Paedeatricians wwith a referral to CAMHS as its suspected she is on the spectrum as well.

My husband, (40), also displays a lot of the same behavioural traits and after being on anti depressants for over 4 years, we finally got a referral to the mental health team who basically have said, yes it could be your ASD but your old, we can't really say so easily, and discharged him. 

After such a long slog trying to get him some help, I am buckling under the pressure trying to cope with him, 5 kids and a degree course fulltime. Noone gets PIP, disability allowance, carers allowance or ESA - I would appreciate any advice on how to get his needs recognised and find some support. 

Thank you. 

Parents

  • I would add that almost no one who is diagnosed as autistic as an adult gets any support or help from statutary bodies.

    Most of us seek diagnosis just to get some self knowledge and insight. If we thought we were getting any help then the system quickly disabuses us of that fanciful notion.

    Getting a diagnosis as an adult brings its own problems. For some its a relief but others are left angry and resentful and must deal alone with these difficult and painful feelings.

Reply

  • I would add that almost no one who is diagnosed as autistic as an adult gets any support or help from statutary bodies.

    Most of us seek diagnosis just to get some self knowledge and insight. If we thought we were getting any help then the system quickly disabuses us of that fanciful notion.

    Getting a diagnosis as an adult brings its own problems. For some its a relief but others are left angry and resentful and must deal alone with these difficult and painful feelings.

Children
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