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Adult autism- how to get diagnosis?

happispirit

Hi,

I have 5 children 15, 13, 7, 5 and 3 and my oldest has been diagnosed as being within the ASD spectrum and in attendance at a SEN school,  with the second currently under Community Paedeatricians wwith a referral to CAMHS as its suspected she is on the spectrum as well.

My husband, (40), also displays a lot of the same behavioural traits and after being on anti depressants for over 4 years, we finally got a referral to the mental health team who basically have said, yes it could be your ASD but your old, we can't really say so easily, and discharged him. 

After such a long slog trying to get him some help, I am buckling under the pressure trying to cope with him, 5 kids and a degree course fulltime. Noone gets PIP, disability allowance, carers allowance or ESA - I would appreciate any advice on how to get his needs recognised and find some support. 

Thank you. 

Parents

  • Thanks for reply,

    I do not understand the system, it was a hard 20 month journey to get my daighter diagnosed and i have been trying for my second to get support since she was 18 months old. 3 times the hubby has been referred to Birmingham Healthy Minds, in just 3 years and the first 2 times they tried to sign him up for group anger management sessions, which he cannot, and will not,  attend beccause he cannot cope in social situations, the last time they called asked what they could do to help him, and then sent him leaflets on controlling anger and self help for anger issues. The point being he has no idea what help he needs beyond the fact that we know he does not cope well, sometimes not at all, outside of his safe environment. 

    He is not angry as such, much like our eldest, he comes across in an aggressive or agitated way, he misreads social situations, cannot verblise his thoughts coherently or with any real accuracy, most days-but that is just the way he is, he was supposed to be given access to CBT through Healthy Minds, and that never happened.

    I fought to get him re-referred to the Mental health team , where he saw a pyshcologist once, during the session she stated at his age it would be difficult to decipher and as he had some traumatic events in adolescence that wouldnt help either - We left it that she would be in touch in about 6 weeks to see how he was progressing with different dosage of antidepressants and if they could aid further.

    4 weeks later he rang through to check something and was told there was information on autism in the post and he had been discharged. This was last week, still no information and no where to go! The GP said on Monday she would ask them to resend the letter they claim to have posted but as far as any help goes she just shook her head.

    Alas, I cannot afford to go private and I have so little strength left to fight anyone or push any further, I just want him to get the help he needs before I lose the will entirely. :(

Reply

  • Thanks for reply,

    I do not understand the system, it was a hard 20 month journey to get my daighter diagnosed and i have been trying for my second to get support since she was 18 months old. 3 times the hubby has been referred to Birmingham Healthy Minds, in just 3 years and the first 2 times they tried to sign him up for group anger management sessions, which he cannot, and will not,  attend beccause he cannot cope in social situations, the last time they called asked what they could do to help him, and then sent him leaflets on controlling anger and self help for anger issues. The point being he has no idea what help he needs beyond the fact that we know he does not cope well, sometimes not at all, outside of his safe environment. 

    He is not angry as such, much like our eldest, he comes across in an aggressive or agitated way, he misreads social situations, cannot verblise his thoughts coherently or with any real accuracy, most days-but that is just the way he is, he was supposed to be given access to CBT through Healthy Minds, and that never happened.

    I fought to get him re-referred to the Mental health team , where he saw a pyshcologist once, during the session she stated at his age it would be difficult to decipher and as he had some traumatic events in adolescence that wouldnt help either - We left it that she would be in touch in about 6 weeks to see how he was progressing with different dosage of antidepressants and if they could aid further.

    4 weeks later he rang through to check something and was told there was information on autism in the post and he had been discharged. This was last week, still no information and no where to go! The GP said on Monday she would ask them to resend the letter they claim to have posted but as far as any help goes she just shook her head.

    Alas, I cannot afford to go private and I have so little strength left to fight anyone or push any further, I just want him to get the help he needs before I lose the will entirely. :(

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