Adult autism- how to get diagnosis?

Hi,

I have 5 children 15, 13, 7, 5 and 3 and my oldest has been diagnosed as being within the ASD spectrum and in attendance at a SEN school,  with the second currently under Community Paedeatricians wwith a referral to CAMHS as its suspected she is on the spectrum as well.

My husband, (40), also displays a lot of the same behavioural traits and after being on anti depressants for over 4 years, we finally got a referral to the mental health team who basically have said, yes it could be your ASD but your old, we can't really say so easily, and discharged him. 

After such a long slog trying to get him some help, I am buckling under the pressure trying to cope with him, 5 kids and a degree course fulltime. Noone gets PIP, disability allowance, carers allowance or ESA - I would appreciate any advice on how to get his needs recognised and find some support. 

Thank you. 

Parents
  • Appauling if they really did say he old so they can't say. Downright disgusting in fact. THe Mental Health Team cannot really say because they haven't any access to the diagnostic assessments. They can refer to have the assessment but cannot do the assessment themselves. I would actively complain if I were you about the poor service.

    To get referred for an assessment, the Mental Health Team could do this is have done for me the other year and am 47 now. But failing that you had such a poor service you do need to go back to the GP and hope they are much better. Say what happend and ask them how to get a referal for the assessment. The GP refers anyway but I can't remember if it has to be someone like in the Mental Health Team or asking the GP direct. But certainly wont hurt to ask direct and explain why the Mental Health Team really badly let you down. Am so dissappointed for you. But you do need to go to the GP as they refer anyway. Unless you are able to go private. It a lengthy wait but worth while wait for me. Please go to the GP and explain everything.

Reply
  • Appauling if they really did say he old so they can't say. Downright disgusting in fact. THe Mental Health Team cannot really say because they haven't any access to the diagnostic assessments. They can refer to have the assessment but cannot do the assessment themselves. I would actively complain if I were you about the poor service.

    To get referred for an assessment, the Mental Health Team could do this is have done for me the other year and am 47 now. But failing that you had such a poor service you do need to go back to the GP and hope they are much better. Say what happend and ask them how to get a referal for the assessment. The GP refers anyway but I can't remember if it has to be someone like in the Mental Health Team or asking the GP direct. But certainly wont hurt to ask direct and explain why the Mental Health Team really badly let you down. Am so dissappointed for you. But you do need to go to the GP as they refer anyway. Unless you are able to go private. It a lengthy wait but worth while wait for me. Please go to the GP and explain everything.

Children
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