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Is there any hope?

Forestfriend

My little boy was diagnosed a few months back at age 2.5.  It was no surprise to me, but I kind of thought it might be fairly mild.  He didnt stim really, only lining up toys, a bit of toe walkinG. So I thought it couldn't be very severe. But last few months, he does everything going flapping hands, hyper giggling, running in circles, jumping , grinding teeth and muttering "didah".  The one thing paed said that stays in my mind was that when I see him next things will be better.  At the moment I can't see any improvements in that time, and the appointment is in 6 weeks time! I just cant imagine things getting any better because everything has stayed the same so long.....just no progress..... Kind of losing hope.  He is now nearly 3, stimmimg, lining up, echolalia, repeats words but has no intention behind words, empties boxes on floor all the time, no imaginary play.  Just about can ask for TV or snack using one word sentence. Is there anyone else out there who has experienced similar, but eventually seen some progress.  I'm starting to think this is it, he wont progress any more. 

Parents

  • Your son reminds me of my nephew at that age.  He did a lot of rocking and head banging, wouldn't play and wouldn't speak.  He learned to communicate with Makaton sign language but then his talking developed and he could speak later on.  His parents had a lot of worries with his behaviour.   He went to a special educational needs school, and then followed on with college where they could help with his needs.

    He's now a young man aged 18, and has learnt to drive and is a very capable driver and a lovely person.  He does still stim when he is stressed.  He is trying to get a job but it seems no one will give him the opportunity yet.  But he is determined to keep trying.

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  • Your son reminds me of my nephew at that age.  He did a lot of rocking and head banging, wouldn't play and wouldn't speak.  He learned to communicate with Makaton sign language but then his talking developed and he could speak later on.  His parents had a lot of worries with his behaviour.   He went to a special educational needs school, and then followed on with college where they could help with his needs.

    He's now a young man aged 18, and has learnt to drive and is a very capable driver and a lovely person.  He does still stim when he is stressed.  He is trying to get a job but it seems no one will give him the opportunity yet.  But he is determined to keep trying.

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