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How would you describe autism? - Language Research released

Avi Moderator
Hi all,
We don’t often post like this but we’d like to let you know about an important piece of research we have released today regarding (THIS IS NO LONGER AVAILABLE) autism. It is based on a survey of 3,470 people including people on the spectrum, their families, friends and professionals.
We are keen to know what you think about this so let us know in this thread.
Take care,

Avi
Moderator 
 
Parents

  • Only 12% of the responses were people who had autism. Is NAS talking to the right people?

    I assume the numbers surveyed indicate that some people answered in more than one category, as the total number of responses was 4198 of whom 502 were on the spectrum.

    The survey also excluded under 18s. This may have been a requirement of filling in the survey, but whether over 18s are reached by such surveys is the big question. Some over-18s may be NAS members, but usually you cannot be a member of a parent group as a person with autism, only as a parent.

    Responses from parents may represent a perspective of people with autism, but is it the same.

    Research about living with autism seldom seems to ask people with autism.

Reply

  • Only 12% of the responses were people who had autism. Is NAS talking to the right people?

    I assume the numbers surveyed indicate that some people answered in more than one category, as the total number of responses was 4198 of whom 502 were on the spectrum.

    The survey also excluded under 18s. This may have been a requirement of filling in the survey, but whether over 18s are reached by such surveys is the big question. Some over-18s may be NAS members, but usually you cannot be a member of a parent group as a person with autism, only as a parent.

    Responses from parents may represent a perspective of people with autism, but is it the same.

    Research about living with autism seldom seems to ask people with autism.

Children
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