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Unsympathetic Dr

InTrouble

Hello all :)

I just joined this site tonight because I'm at the end of my tether and not sure of my son's rights (he is now 19).

He has autism and ADHD, diagnosed many years ago as a child after extensive tests.

During school he was taking Concerta XL medication - School insisted he coud not attend if he had not taken his medication, after various "events" including a fellow pupil hospitalised.

After a time at college my son is now receiving ESA.

However our doctor only gives him one month's note at a time...in between each he has to see her, whereupon she gives him "tasks". One of these was to wash up after the family instead of just himself.

He cannot fulful these tasks. We are forced to lie in order that she will sign his note for the next month.

Last month she asked him a question - I forget what it was - but he replied why would he want to do that, there was no reason he would do that. She questioned further and he shrugged his shoulders and asked her "Why would I do anything that has no self gain? That makes no sense"

A typical autustic response, I thought. Yet she said "So why are you here then? Just for the money?"

Well I am livid.

My four able children (another also autistic, but better now older) have worked ever since school, we are not a family of scroungers.

Every month my son has to see this Dr for his note, and every month she sets him tasks that he can not/will not do.

It's as if she feels she can cure him with her 5 minute a month sessions.

We don't know where we stand. We tried to see a different Dr last time but this other doctor had put it on the system that he must see her and so this different doctor was uncomfortable to see him.

Please can anyone clarify or offer any advice? Should we change surgery? IS my son a scrounger and not entitled to his ESA? Any input, please :(

Thank you :)

Tess

Parents
  • Former Member
    Former Member

    DaisyGirl said:

    Do not assume that the GP is doing the right thing or that they know what they are doing. They might be making it up as they go along.

    But equally

    Do not assume that the GP is doing the wrong thing or that they don't know what they are doing. They might not be making it up as they go along.

    I think it is good to try and understand what the doctor might be trying to do. Don't jump to conclusions. It may be a bad thing to do in this case or it may be appropriate care. I don't think we know enough about the individual or about the doctor's expertese to come to a judgement.

    Lastly, a lot of people on this forum are very high functioning and find being challenged by normal CBT is fine for them. For a very large number of people with autism any form of simple CBT is absolutley impossible and causes high levels of anxiety, some of us just can't do it, we don't "get it" and it is not for us. People who are of normal intelligence but whose autistic triats are very pronounced need people with true expert knowledge of autism, these therapists can then use a modified form of CBT which is very specific to the triats of the individual.

    Agreed that simple CBT may not be appropriate but that some form of CBT might work for him. I'm not exactly sure what simple CBT would include and would have assumed that CBT would always have to be tailored for the individual.

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  • Former Member
    Former Member

    DaisyGirl said:

    Do not assume that the GP is doing the right thing or that they know what they are doing. They might be making it up as they go along.

    But equally

    Do not assume that the GP is doing the wrong thing or that they don't know what they are doing. They might not be making it up as they go along.

    I think it is good to try and understand what the doctor might be trying to do. Don't jump to conclusions. It may be a bad thing to do in this case or it may be appropriate care. I don't think we know enough about the individual or about the doctor's expertese to come to a judgement.

    Lastly, a lot of people on this forum are very high functioning and find being challenged by normal CBT is fine for them. For a very large number of people with autism any form of simple CBT is absolutley impossible and causes high levels of anxiety, some of us just can't do it, we don't "get it" and it is not for us. People who are of normal intelligence but whose autistic triats are very pronounced need people with true expert knowledge of autism, these therapists can then use a modified form of CBT which is very specific to the triats of the individual.

    Agreed that simple CBT may not be appropriate but that some form of CBT might work for him. I'm not exactly sure what simple CBT would include and would have assumed that CBT would always have to be tailored for the individual.

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