Unsympathetic Dr

Hello all :)

I just joined this site tonight because I'm at the end of my tether and not sure of my son's rights (he is now 19).

He has autism and ADHD, diagnosed many years ago as a child after extensive tests.

During school he was taking Concerta XL medication - School insisted he coud not attend if he had not taken his medication, after various "events" including a fellow pupil hospitalised.

After a time at college my son is now receiving ESA.

However our doctor only gives him one month's note at a time...in between each he has to see her, whereupon she gives him "tasks". One of these was to wash up after the family instead of just himself.

He cannot fulful these tasks. We are forced to lie in order that she will sign his note for the next month.

Last month she asked him a question - I forget what it was - but he replied why would he want to do that, there was no reason he would do that. She questioned further and he shrugged his shoulders and asked her "Why would I do anything that has no self gain? That makes no sense"

A typical autustic response, I thought. Yet she said "So why are you here then? Just for the money?"

Well I am livid.

My four able children (another also autistic, but better now older) have worked ever since school, we are not a family of scroungers.

Every month my son has to see this Dr for his note, and every month she sets him tasks that he can not/will not do.

It's as if she feels she can cure him with her 5 minute a month sessions.

We don't know where we stand. We tried to see a different Dr last time but this other doctor had put it on the system that he must see her and so this different doctor was uncomfortable to see him.

Please can anyone clarify or offer any advice? Should we change surgery? IS my son a scrounger and not entitled to his ESA? Any input, please :(

Thank you :)

Tess

Parents
  • Hi,

    I don't know your sons situation, but I can guess from what you say, that a lot of his early experiences have been very negitive and that this has had a detrimental impact on him.

    However, I think that if you are lying to her each time you visit; about your sons accomplishments, She probably does feel as though she's setting small tasks that she believes are achievable by your son and that these are successful because of the feedback she gets.

    Have you considered reading, 'Living Well On The Specrum,' by Valarie Gaus to help your son? It's a work book with great insights and may help your son.

    As parents it would be very easy for us to sit back and let our children stay in their room on the computer all day. After a serious assault on my son, that's exactly what happened to him. It was nearly 2 years before we managed to move him out of his comfort zone and we very nearly gave up. Sometimes we need to push the boundries a little with our children, if only to reinforce a more positive self-esteem.

    I realize this can be hard. My son did an ASDAN course for life skills and did well in the course, but translating skills learned in a class environment to everyday living is a completely different senario and it's often difficult for those with ASD to even identify when these skills need to be applied. My son still requires considerable support and steering in daily living, but given instruction and guidence he does achieve small tasks.

    The thing is, that with regular exposure and patience it is possible to learn new skills and this can have the effect of lifting morale as different goals are achieved.

    If I were you, I would talk to the GP and mention that your son finds these tasks set by her, stressful (If that really is the situation.) Tell her that you are happy to visit each month, but that you would like to take control of setting your son some tasks yourself, as you have found a workbook that focuses on an individuals weaknesses and uses them to achieve positive outcomes. Tell her that you are happy to return on a regular basis to see her and show her the book if necessary. This will give control of any tasks set, back to the family and reduce his anxiety over the visits. Also it will reduce the need for you to lie. You never know, she may even give you a longer note. while you start working with him.

    Discuss the workbook with your son first or course, and then see if he would like to explore and identify some of the issues he struggles with and look at ways of achieving other things.

    Your son made a valid point. 'Why would I do anything that has no self gain?' If you expect your son to learn some life skills, you have to give him the reason for doing it, which benefits him. Keep that in mind as you look at the different aspects of living well on the spectrum.

    No one is in a better position than youself to say whether your son should be entirely supported or not. This is a judgement call for you and you only, but it is possible with the right support to make small progressive steps toward a little more independance. My son will always need support, but their are some things he can do if prompted.

    I think this issue of being vewed as a scrounger is very detrimental to those with ASD. It can force those who are not ready, into situations that they cannot cope with (For not wanting to be viewed as such.); or on the flip side, make others feel worthless. Support is there for those most in need. If that is your son, then accept his limitations and support him as best as you can. What others think is not your issue or their business.

    All of us need a purpose in life, no matter how small. It may be that this Gp's level of knowledge about ASD is poor, but if that's the case, she needs enlightening. It may be that she sees many others without ASD, who are just playing the system.It's her job to decide who they are and act accordingly.

    I hope my ramblings are of some help.

    Coogy

Reply
  • Hi,

    I don't know your sons situation, but I can guess from what you say, that a lot of his early experiences have been very negitive and that this has had a detrimental impact on him.

    However, I think that if you are lying to her each time you visit; about your sons accomplishments, She probably does feel as though she's setting small tasks that she believes are achievable by your son and that these are successful because of the feedback she gets.

    Have you considered reading, 'Living Well On The Specrum,' by Valarie Gaus to help your son? It's a work book with great insights and may help your son.

    As parents it would be very easy for us to sit back and let our children stay in their room on the computer all day. After a serious assault on my son, that's exactly what happened to him. It was nearly 2 years before we managed to move him out of his comfort zone and we very nearly gave up. Sometimes we need to push the boundries a little with our children, if only to reinforce a more positive self-esteem.

    I realize this can be hard. My son did an ASDAN course for life skills and did well in the course, but translating skills learned in a class environment to everyday living is a completely different senario and it's often difficult for those with ASD to even identify when these skills need to be applied. My son still requires considerable support and steering in daily living, but given instruction and guidence he does achieve small tasks.

    The thing is, that with regular exposure and patience it is possible to learn new skills and this can have the effect of lifting morale as different goals are achieved.

    If I were you, I would talk to the GP and mention that your son finds these tasks set by her, stressful (If that really is the situation.) Tell her that you are happy to visit each month, but that you would like to take control of setting your son some tasks yourself, as you have found a workbook that focuses on an individuals weaknesses and uses them to achieve positive outcomes. Tell her that you are happy to return on a regular basis to see her and show her the book if necessary. This will give control of any tasks set, back to the family and reduce his anxiety over the visits. Also it will reduce the need for you to lie. You never know, she may even give you a longer note. while you start working with him.

    Discuss the workbook with your son first or course, and then see if he would like to explore and identify some of the issues he struggles with and look at ways of achieving other things.

    Your son made a valid point. 'Why would I do anything that has no self gain?' If you expect your son to learn some life skills, you have to give him the reason for doing it, which benefits him. Keep that in mind as you look at the different aspects of living well on the spectrum.

    No one is in a better position than youself to say whether your son should be entirely supported or not. This is a judgement call for you and you only, but it is possible with the right support to make small progressive steps toward a little more independance. My son will always need support, but their are some things he can do if prompted.

    I think this issue of being vewed as a scrounger is very detrimental to those with ASD. It can force those who are not ready, into situations that they cannot cope with (For not wanting to be viewed as such.); or on the flip side, make others feel worthless. Support is there for those most in need. If that is your son, then accept his limitations and support him as best as you can. What others think is not your issue or their business.

    All of us need a purpose in life, no matter how small. It may be that this Gp's level of knowledge about ASD is poor, but if that's the case, she needs enlightening. It may be that she sees many others without ASD, who are just playing the system.It's her job to decide who they are and act accordingly.

    I hope my ramblings are of some help.

    Coogy

Children
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