I have posted before but still feeling confused xxx

Hello everyone

Our daughter is seven and in year two at school. She was diagnosed with sensory processing disorder in July 2012 and mild asd in December 2012. Since she has been diagnosed she has always held it together while at school so we sometimes get the stress releasers at home. I have been back in touch with the paediatrician and occupational therapist since but they say its stuff we should deal with and are not entitled to any professional help. I'm having days where I feel lost as what to do. We do rewards and discipline but on bad days she isn't bothered. We have tried having home as regimented as school cause others have said she is fine at school because she knows what's expected of her. I just feel like we're letting her down. I do none of her spd therapy cause I don't quite get it. Yesterday I had a day where it was just the two of us n I lost my temper with her a few times cause of her not being able to stay focused at something for long but then I am expecting to much. This week I've been thinking of home schooling her as alot of her anxieties stem from school but I just don't know cause she lives school. She doesn't make the connection when things upset her. I am so confused. Is it ok to ignore her sen needs n treat her normal or do we need to be doing stuff. Can anyone help xx

Parents
  • Hi,

    My son was diagnosed with similar but Dyspraxia and nvld I was told he had pdd milder end of spectrum possibly Asperger have had a real nightmare getting help at all.  He is now an adult  and I am still fighting the system if anything its worse as you are left COMPLETELY on you own.

    These sensory issues you mention I know really they are so difficult to deal with and there isn't enough help.   I know I have been there.  This mild word that professionals use is complete nonsense, its an excuse for lack of funding.  From experience the problem with the local authorities is who is going to pay and that of course means who is responsible.  My sons sensory issues have improved with time but not completely.

    He still uses headphones when using the vacuum cleaner hates bright light etcetc

    Can your daughter use her hands well using crayons and constructing things with lego etc?

Reply
  • Hi,

    My son was diagnosed with similar but Dyspraxia and nvld I was told he had pdd milder end of spectrum possibly Asperger have had a real nightmare getting help at all.  He is now an adult  and I am still fighting the system if anything its worse as you are left COMPLETELY on you own.

    These sensory issues you mention I know really they are so difficult to deal with and there isn't enough help.   I know I have been there.  This mild word that professionals use is complete nonsense, its an excuse for lack of funding.  From experience the problem with the local authorities is who is going to pay and that of course means who is responsible.  My sons sensory issues have improved with time but not completely.

    He still uses headphones when using the vacuum cleaner hates bright light etcetc

    Can your daughter use her hands well using crayons and constructing things with lego etc?

Children
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