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I have posted before but still feeling confused xxx

jrandall10

Hello everyone

Our daughter is seven and in year two at school. She was diagnosed with sensory processing disorder in July 2012 and mild asd in December 2012. Since she has been diagnosed she has always held it together while at school so we sometimes get the stress releasers at home. I have been back in touch with the paediatrician and occupational therapist since but they say its stuff we should deal with and are not entitled to any professional help. I'm having days where I feel lost as what to do. We do rewards and discipline but on bad days she isn't bothered. We have tried having home as regimented as school cause others have said she is fine at school because she knows what's expected of her. I just feel like we're letting her down. I do none of her spd therapy cause I don't quite get it. Yesterday I had a day where it was just the two of us n I lost my temper with her a few times cause of her not being able to stay focused at something for long but then I am expecting to much. This week I've been thinking of home schooling her as alot of her anxieties stem from school but I just don't know cause she lives school. She doesn't make the connection when things upset her. I am so confused. Is it ok to ignore her sen needs n treat her normal or do we need to be doing stuff. Can anyone help xx

Parents

  • Great advice Denise476,

          The only thing I can add which maybe of some help was that I had the same issues with OT and struggled to maintain the regime. To keep us on course, I consulted a private OT weekly who added variety to the task and kept us focused. We used my sons DLA to finance this, otherwise it would never have been an option we could have afforded.

    As a parent who has done the home-Schooling thing, I can say that it's not for the faint-hearted, but I really had no choice as my children were at breaking point. Mine were at Primary also but I couldn't have managed Home-Schooling into Secondary education and the truth is that social interaction with peers is important. Plus it is good for your own sanity to have periods apart.

    Being a parent is one of the most demanding jobs their is, but also has it's rewards. Being a parent of a child with special needs, takes that demand to very edge of human endurance at times, but equally, watching tiny steps of progress unfold can be equally, if not more, rewarding.

    Be kind to yourself. Everyone is different and no two families are the same, just as no two children with SEN are the same.

    Our children don't come with a manual and conforming to what society expects is seldom helpful to families such as ours. It puts unnecessary pressure on us. Your family is unique and you must do things that suit you, at your pace and in the interests of your families well-being.

    Take Care

    Coogybear xx

Reply

  • Great advice Denise476,

          The only thing I can add which maybe of some help was that I had the same issues with OT and struggled to maintain the regime. To keep us on course, I consulted a private OT weekly who added variety to the task and kept us focused. We used my sons DLA to finance this, otherwise it would never have been an option we could have afforded.

    As a parent who has done the home-Schooling thing, I can say that it's not for the faint-hearted, but I really had no choice as my children were at breaking point. Mine were at Primary also but I couldn't have managed Home-Schooling into Secondary education and the truth is that social interaction with peers is important. Plus it is good for your own sanity to have periods apart.

    Being a parent is one of the most demanding jobs their is, but also has it's rewards. Being a parent of a child with special needs, takes that demand to very edge of human endurance at times, but equally, watching tiny steps of progress unfold can be equally, if not more, rewarding.

    Be kind to yourself. Everyone is different and no two families are the same, just as no two children with SEN are the same.

    Our children don't come with a manual and conforming to what society expects is seldom helpful to families such as ours. It puts unnecessary pressure on us. Your family is unique and you must do things that suit you, at your pace and in the interests of your families well-being.

    Take Care

    Coogybear xx

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