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CALLING THE AUTISM COMMUNITY-Your rare opportunity to have a voice!

terrorhawk

Hi everyone,

My name's Tahira and I'm a parent of an autistic 10 year old girl and 2 other children.

I have battled for many years for resources and eventually forwarded a complaint to the Parliamentary and Health Service Ombudsman which was upheld after a thorough 2 year investigation.

As a result of this, I have been selected as 1 of 9 people nationwide to help with reforms in the way complaints are handled when people have problems with government departments and the NHS.

I would love to be able to bring the stories and experiences of as many individuals and families as possible when I meet at the Ombudsman Office in 11 days time.

Please forward me your experiences and share my blog:

http://bit.ly/1zFgL3O

Thanks so much

Tahira

Parents

  • Ok this topic initiated by electra has come in under another raised by terrorhawk, after I asked where was the information; I thought they were connected at first, but now am not so sure.

    The deadline for responding to the consultation on the revised version of what started out as Living rewarding and fulfulling lives - Adults with autism strategy, is this Friday 19th December.

    Its a pity if few have felt stirred to respond. It addresses thing like the attitudes of GPs as gatekeepers for diagnosis and support, and whether health and social services workers sufficiently understand the issues - what training they get, and so on.

    Maybe everyone has got fed up with it all, given it seems to get us nowhere.

    I've made a response. I hope others will, because a lot of the issues that crop up on here week by week are represented to some extent in the consultation document, and if we don't speak up at this point, we may not get another chance.

    Also I really cannot comprehend why NAS has kept such a low profile over making this consultation known to us. I guess they want a clear party line this time around, but couldn't they just explain that to us?

Reply

  • Ok this topic initiated by electra has come in under another raised by terrorhawk, after I asked where was the information; I thought they were connected at first, but now am not so sure.

    The deadline for responding to the consultation on the revised version of what started out as Living rewarding and fulfulling lives - Adults with autism strategy, is this Friday 19th December.

    Its a pity if few have felt stirred to respond. It addresses thing like the attitudes of GPs as gatekeepers for diagnosis and support, and whether health and social services workers sufficiently understand the issues - what training they get, and so on.

    Maybe everyone has got fed up with it all, given it seems to get us nowhere.

    I've made a response. I hope others will, because a lot of the issues that crop up on here week by week are represented to some extent in the consultation document, and if we don't speak up at this point, we may not get another chance.

    Also I really cannot comprehend why NAS has kept such a low profile over making this consultation known to us. I guess they want a clear party line this time around, but couldn't they just explain that to us?

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