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CALLING THE AUTISM COMMUNITY-Your rare opportunity to have a voice!

terrorhawk

Hi everyone,

My name's Tahira and I'm a parent of an autistic 10 year old girl and 2 other children.

I have battled for many years for resources and eventually forwarded a complaint to the Parliamentary and Health Service Ombudsman which was upheld after a thorough 2 year investigation.

As a result of this, I have been selected as 1 of 9 people nationwide to help with reforms in the way complaints are handled when people have problems with government departments and the NHS.

I would love to be able to bring the stories and experiences of as many individuals and families as possible when I meet at the Ombudsman Office in 11 days time.

Please forward me your experiences and share my blog:

http://bit.ly/1zFgL3O

Thanks so much

Tahira

Parents

  • Gosh that's slipped in under the radar then.........

    I'm completely unaware of this. Wouldn't it be useful to mention it in NAS News? Or are they trying to ensure an official line and no individuals muddying the waters this time? It hasn't even been mentioned in the news from my local NAS.

    This is a chance to comment on the next stage following on from Living Rewarding and Fulfilling Lives. So it affects all of us, particularly what we can expect to get from Local Authority Social Services, but also Health Services. So I do wonder why the circulation is so low key this time.

    I've had a quick glance and two things stand out. One is that the perception of adults with autism just relates to those now going through transition. Those first diagnosed  as schoolchildren are now in their fifties - where are they in this? Not to mention those diagnosed as adults.

    Particularly discussion of employment keeps mentioning "young adults" which is important, don't get me wrong, but there doesn't seem to be anything about ongoing employment for older adults and getting unemployed older adults into work. I get the feeling we're brushing the oldies under the carpet and saying we'll just address new auties.

    The second thing is its about people with marked autism, not people at the manageable end. That remains a particular problem, because if you are relatively abler and struggling, what is being described doesn't cover your needs.

    So given the implications for many people, why is this majorly important consultation so hush hush?

Reply

  • Gosh that's slipped in under the radar then.........

    I'm completely unaware of this. Wouldn't it be useful to mention it in NAS News? Or are they trying to ensure an official line and no individuals muddying the waters this time? It hasn't even been mentioned in the news from my local NAS.

    This is a chance to comment on the next stage following on from Living Rewarding and Fulfilling Lives. So it affects all of us, particularly what we can expect to get from Local Authority Social Services, but also Health Services. So I do wonder why the circulation is so low key this time.

    I've had a quick glance and two things stand out. One is that the perception of adults with autism just relates to those now going through transition. Those first diagnosed  as schoolchildren are now in their fifties - where are they in this? Not to mention those diagnosed as adults.

    Particularly discussion of employment keeps mentioning "young adults" which is important, don't get me wrong, but there doesn't seem to be anything about ongoing employment for older adults and getting unemployed older adults into work. I get the feeling we're brushing the oldies under the carpet and saying we'll just address new auties.

    The second thing is its about people with marked autism, not people at the manageable end. That remains a particular problem, because if you are relatively abler and struggling, what is being described doesn't cover your needs.

    So given the implications for many people, why is this majorly important consultation so hush hush?

Children
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