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Just got my Diagnostic Report

NinjaPanda85

Hey everyone,

Just got and read my diagnostic report, which showed I scored highly for Autism. The Autism diagnosis was not surprisinging to a large extent, but how highly i scored was if that makes sense.

Felt the report covered everything and no factual errors which was good. Still felt abit of a sad read to read my history and finally get confirmation in writing at 41. 

The report is going to my GP, but theres no recomendations on it beyond that. I think i was perhaps naively hoping for abit more direction post diagnosis.

Just feels abit weird to read a report saying "he really struggles" but then bye we have tested him job done no recommendations.

is this something others have experienced? Any general advice /thoughts appreciated as feeling bit lost/deflated.

Thanks

Parents

  • Congrats on your diagnosis. You might feel a bit lost for the next few months, just absorbing it and realising that some stuff in your life that you stress over may not change and you need to reassess how you approach it. It's not straightforward.

    So many people here post about the same thing you are experiencing - that diagnosis is not connected to support. Support seems to be something that's largely missing for adults, unless you have learning difficulties or are totally incapacitated. It's a poor situation. Perhaps the first step is to talk to your GP about it. You might also want to check out the NAS guidance on after diagnosis elsewhere on this website.

    Support availability can also vary from country to country within the UK, and even between counties in each country. There's a one-stop shop drop-in support in my nearest city (Perth in Scotland), but I don't know whether such things exist outside the very small number in Scotland.

Reply

  • Congrats on your diagnosis. You might feel a bit lost for the next few months, just absorbing it and realising that some stuff in your life that you stress over may not change and you need to reassess how you approach it. It's not straightforward.

    So many people here post about the same thing you are experiencing - that diagnosis is not connected to support. Support seems to be something that's largely missing for adults, unless you have learning difficulties or are totally incapacitated. It's a poor situation. Perhaps the first step is to talk to your GP about it. You might also want to check out the NAS guidance on after diagnosis elsewhere on this website.

    Support availability can also vary from country to country within the UK, and even between counties in each country. There's a one-stop shop drop-in support in my nearest city (Perth in Scotland), but I don't know whether such things exist outside the very small number in Scotland.

Children
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