STAY WOKE

I have been thinking a lot recently about life experiences of people with autism, the things they grow up with and go through at work which go unchallenged.

For me these are injustices, I feel like I was mistreated and I know in a few cases employers were breaking the law. I feel a lot of injustice that I don't want to let go of, although I am not militant about it.

I see how society is slanted and opposed to how neurodiverse people operate, and neuro typical people are, in my experience, militant to defend what they view as their world.

Obviously late diagnosed peoples view of their legal (and human) rights differs as its only possible to see in hindsight.

There's things now I wouldn’t let happen again, but it is catch 22 because I will never be that same age or position again.

My main concern now is that Ii don't want to become desensitised to what I have learned, with diagnosis as awareness. People struggling at school or in the workplace, who may not know why.

Also not everyone wants or will be happy with a diagnosis, especially earlier in life. In some cases life is better not knowing and struggling. 

Parents
  • A lot of what you say has been my experience too.

    Like many people, I wrestled in my mind with the ‘what could have beens’. I strive to keep focussed on the present but the thoughts return and I think many of those past events have led to my treatment resistant depression and anxiety.

    My main concern now is that Ii don't want to become desensitised to what I have learned, with diagnosis as awareness. People struggling at school or in the workplace, who may not know why

    That is a concern as desensitisation to all sorts of things, including world atrocities is part of the human condition. Government policies on autism related issues change often, partly because ministers tend not to stay long in the job any more. The only thing I can do is to speak out (in writing) about the injustices autistic people go through. I support campaigns by autism charities and write to MPs about autism related issues policies and issues. It helps turn things round for myself and maybe my efforts will contribute to raising public awareness and potentially help others.

    I don’t like the word ‘woke’ because it’s not always clear what people mean, although the intent seems always to be derogatory. 

Reply
  • A lot of what you say has been my experience too.

    Like many people, I wrestled in my mind with the ‘what could have beens’. I strive to keep focussed on the present but the thoughts return and I think many of those past events have led to my treatment resistant depression and anxiety.

    My main concern now is that Ii don't want to become desensitised to what I have learned, with diagnosis as awareness. People struggling at school or in the workplace, who may not know why

    That is a concern as desensitisation to all sorts of things, including world atrocities is part of the human condition. Government policies on autism related issues change often, partly because ministers tend not to stay long in the job any more. The only thing I can do is to speak out (in writing) about the injustices autistic people go through. I support campaigns by autism charities and write to MPs about autism related issues policies and issues. It helps turn things round for myself and maybe my efforts will contribute to raising public awareness and potentially help others.

    I don’t like the word ‘woke’ because it’s not always clear what people mean, although the intent seems always to be derogatory. 

Children
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