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Hospitalised PDA child

Blueplanet

Please help! My 12 year old has had an autistic shutdown with severe PDA, low mood- severe anxiety, angry dysregulations, no self care for 4 months ( same clothes since admission, no brushing or bathing) on a hospital ward under CTO, unable to take medications or engage with any psychological interventions. He has become non verbal in hospital, communicating with typing only on Ipad. He is unable to clearly describe his emotions but is clearly depressed with extreme negative thought ruminations. 

A high achieving, regular school attender in primary but this year with transition to secondary school, has experienced bullying at school and refuses to attend- terrified about online schooling too. Stuck in hospital and his anxiety is worsening about not being able to go home. Community Teams feeling worried to let him home as he needed a very traumatising regimen of multiple sedative intramuscular injections to get him to hospital. I have informed the MHO of the situation but no one seems to have a clue how to move forward.

Any thoughts and suggestions about what I can do to help my son, is most appreciated. 

Parents

  • Thanks so much, really appreciate your thoughts! My child, husband and I have been in hospital accommodation with my son, 160miles away for the last 5 months. He absolutely does not want things from home as it reminds him of home and his literal mind does not tolerate any 'mixing'.... Home things cannot be in hospital! I have bought some sensory objects anf requested hospital for sensory modifications to his environment with little response... He keeps his room totally dark, prefers very low volume talk from people. He is gifted in playing piano on his ipad but gets frustrated easily with notes which are not 'super perfect'. He does not like to play any video games. He likes lego but feels unable to let himself 'enjoy' it in hospital as does not want 'mixing leisure with hospital environment'. 

    He has simply refused to engage with any psychological interventions and Art therapy too. He keeps saying he is scared but is unable to say what is upsetting him. He stopped taking medications 3 weeks ago and now, we have a stalemate situation about any possibility of discharge home. 

    Thank you so very much again:) and yes, I will keep trying my best to advocate for him and get him out of hospital in a safe way. 

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  • Thanks so much, really appreciate your thoughts! My child, husband and I have been in hospital accommodation with my son, 160miles away for the last 5 months. He absolutely does not want things from home as it reminds him of home and his literal mind does not tolerate any 'mixing'.... Home things cannot be in hospital! I have bought some sensory objects anf requested hospital for sensory modifications to his environment with little response... He keeps his room totally dark, prefers very low volume talk from people. He is gifted in playing piano on his ipad but gets frustrated easily with notes which are not 'super perfect'. He does not like to play any video games. He likes lego but feels unable to let himself 'enjoy' it in hospital as does not want 'mixing leisure with hospital environment'. 

    He has simply refused to engage with any psychological interventions and Art therapy too. He keeps saying he is scared but is unable to say what is upsetting him. He stopped taking medications 3 weeks ago and now, we have a stalemate situation about any possibility of discharge home. 

    Thank you so very much again:) and yes, I will keep trying my best to advocate for him and get him out of hospital in a safe way. 

Children
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