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Regardless of who gets what seats in elections….

goesbysteve

As a but if an antidote to the pro-independence thread I thought I’d ask what positive things we’d like as a community of fellow neurodivergent people. I do believe, don’t know if it’s true, that anyone who has had challenges or suffering in life tend toward being compassionate to others too. Especially if one’s situation makes things hard to get a good paid job that allows you to get by properly, feel a sense of personal satisfaction and receive the support and understanding we do need.

Whoever gets in I’d lik3 them to see us and consider how they can help and aid us to make a positive impact on society.

Parents

  • I'd like to see better services for us, or better than what we currently have, or what passes for a service in North Wales. A lot of services seem to have been brainstormed by a load of NT's asked to think not of what we'd like or what our lived experience is, but what it ought to be.

    I'd really like for a service, or all services, to say what they do, rather than ask you what you'd like from them and then tell you they don't do that. It feels like a game of 20 questions rather than something set up to help people. 

    I'm honestly finding AI more helpful than the services for ND people

  • in reply to TheCatWoman

    In Powys where I live there is no county hospital. There are minor injury units and specialist clinic scattered across the county but if you want an operation that’s Aberystwyth or Shrewsbury or the mid-lands.

  • in reply to goesbysteve

    When I lived in Lampeter, I had to go to Cardiff for an operation, I had no aftercare from the hospital because I couldn't get there, I was post surgical and couldn't be bounced around on a bus for hours and hospital transport didn't go outside of Cardiff and its immediate surroundings and they only did transport for your first appointment because the service was underfunded and over used, they couldn't get their heads around the idea that before surgery I could drive there myself but couldn't afterwards. I was lucky that I had a really good GP who looked afer me.

    Minor injury units are great until something happens in the radiography dept, when you have to go to Bangor anyway. I agree about how spread out services are, it often seems to make no sense. Whats worse is Bangor hospital tries to encourage people not to drive there for appointments, without ever thinking about how else you're supposed to get there and home again. Lot of small villages have no public transport, not even taxis.

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  • in reply to goesbysteve

    When I lived in Lampeter, I had to go to Cardiff for an operation, I had no aftercare from the hospital because I couldn't get there, I was post surgical and couldn't be bounced around on a bus for hours and hospital transport didn't go outside of Cardiff and its immediate surroundings and they only did transport for your first appointment because the service was underfunded and over used, they couldn't get their heads around the idea that before surgery I could drive there myself but couldn't afterwards. I was lucky that I had a really good GP who looked afer me.

    Minor injury units are great until something happens in the radiography dept, when you have to go to Bangor anyway. I agree about how spread out services are, it often seems to make no sense. Whats worse is Bangor hospital tries to encourage people not to drive there for appointments, without ever thinking about how else you're supposed to get there and home again. Lot of small villages have no public transport, not even taxis.

Children
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