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Being me?

Hergé

Hi, I was diagnosed ASD just over a year ago and then ADHD in September if last year. All this came about as I have TRD and they finally decided to look for a cause.

I'm currently waiting on a decision on whether medication titration for ADHD is suitable for me, so I'm kind of in a state of limbo.

I'm now 54 and to say the last year has been difficult would be an understatement. 

I know that I mirror people but really struggle with interactions. I almost have to become someone else or deploy an almost separate aspect of me. 

I'd like to feel comfortable in my own skin but I suppose I need to know who that is first. I need something to change! I ro the things that are supposed to help, but they don't.

I think I'm just feeling sorry for myself. The local ASD support service (daisy chain) is effectively nonexistent and the NHS mental health waiting list is almost intolerable. (I've been close to calling the crisis line a few times).

So here I am limping along into another year of uncertainty.

I wish you all well and hope your new year brings joy and wonder.

Best wishes 

Hergé

  • The support is hard to get. Too many pen-pushers interfering. But don't give up. The right opportunity shall come.

  • Hello  

    Thank you for sharing this with the Community. I'm sorry to hear that you don't feel as though you have been able to find the right support.

    To find out about the support available for autistic adults and how to request an assessment or funding for social care please visit: https://www.autism.org.uk/advice-and-guidance/topics/social-care

    The chatbot AccessAva can be a useful way to find health and social care information. AccessAva is provided by the charity Access Social Care, which specialises in legal advice for people in England with social care needs https://nas.accesscharity.org.uk/

    You can search for professionals in your area we are aware of on the Autism Services Directory: https://www.autism.org.uk/directory

    All the best,

    Chloe Mod

  • I'm sorry to hear you aren't getting much support.  It does seem to be a bit of a post code lottery sometimes as to whether there are any support groups or services.  IT's worth a few google searches on your area and a look at the directory on this site.

    Sometimes there are informal groups which are unknown to GPs etc.  There's one in the West Midlands, for instance, which is just a group of Autistic people who like to get together for a coffee or a pub lunch and play board games.  Something like that might at least allow you to make social contact without pressure to mask and help you process the deeper meanings of the diagnoses by chatting to them.

    I hope in time you find upsides to being Autistic and ADHD.  I'm the former, my partner is the latter and it's all that we like best about each other.

    But in the meantime, it's a lot to process.  It can take a while.