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Catatonia in Autism

swoo11

Hi - Im desperate!!!

I cannot find any info or support groups that can help me. My son is 17 and steadily increasing his Catatonic behaviours. He is on an medication that I dont think is helping but the alternatives are frightening. ECT or benzo???? meds - I believe these are very addictive and the ECT is something I really dont want!! Has anyone any experience they can share?? It may get to the point where he has to live away as we are struggling.

Parents

  • hi swoo11,

    am also like him as a thirty year old-echolalic communication as well as fully non verbal much of the time but am able to avoid the worst of these challenges mostly;through text.

    have been on benzos [diazepam,lorazepam and tempazepam but currently on diaz] for many years every day as part of daily medication and also as daily PRN use,but they dont work anymore and the doctors wont increase them so am on a withdrawal program instead.

    what woud recommend is he try anti pyschotics, am on a lot of haliperidol;both as a twice daily medication and as PRN [up to three lots daily],and this has been a life line with reducing severe challenging behavior and extreme autistic related anxiety.

    as for son,am guessing he has a diagnosed intelectual [learning] disability,he will probably transfer to the social services intelectual disability team in that case, am under them and regulary see their pyschiatrist,they are extremely helpful and understanding of both the ID and autism sides so there is nothing to worry about if theyre anything like mine.

Reply

  • hi swoo11,

    am also like him as a thirty year old-echolalic communication as well as fully non verbal much of the time but am able to avoid the worst of these challenges mostly;through text.

    have been on benzos [diazepam,lorazepam and tempazepam but currently on diaz] for many years every day as part of daily medication and also as daily PRN use,but they dont work anymore and the doctors wont increase them so am on a withdrawal program instead.

    what woud recommend is he try anti pyschotics, am on a lot of haliperidol;both as a twice daily medication and as PRN [up to three lots daily],and this has been a life line with reducing severe challenging behavior and extreme autistic related anxiety.

    as for son,am guessing he has a diagnosed intelectual [learning] disability,he will probably transfer to the social services intelectual disability team in that case, am under them and regulary see their pyschiatrist,they are extremely helpful and understanding of both the ID and autism sides so there is nothing to worry about if theyre anything like mine.

Children
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