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Catatonia in Autism

swoo11

Hi - Im desperate!!!

I cannot find any info or support groups that can help me. My son is 17 and steadily increasing his Catatonic behaviours. He is on an medication that I dont think is helping but the alternatives are frightening. ECT or benzo???? meds - I believe these are very addictive and the ECT is something I really dont want!! Has anyone any experience they can share?? It may get to the point where he has to live away as we are struggling.

Parents

  • Thank you - I have checked the website out and the meds he is on is not listed (unless its under a long chemical name!!) They are not doing any research at the moment either . My son cannot talk and repeats what I say - if I say "are you ok?" he says ok - sometimes even repeats exactly what I have said. I have read about a boy who was on this medication and pointed to his head saying "head hurts" and all his routines and rituals increased while he was on it. The thing is we have one psych who deals with our kids and he is like a god with his wisdom in this area (I also think he is and feel awful doubting him). My son is 18 in December and will transfer to Adult services - maybe a new psych will have a different opinion.

    Thank you so much for your advice though - I was not aware of that site until you mentioned it. Kind regards

Reply

  • Thank you - I have checked the website out and the meds he is on is not listed (unless its under a long chemical name!!) They are not doing any research at the moment either . My son cannot talk and repeats what I say - if I say "are you ok?" he says ok - sometimes even repeats exactly what I have said. I have read about a boy who was on this medication and pointed to his head saying "head hurts" and all his routines and rituals increased while he was on it. The thing is we have one psych who deals with our kids and he is like a god with his wisdom in this area (I also think he is and feel awful doubting him). My son is 18 in December and will transfer to Adult services - maybe a new psych will have a different opinion.

    Thank you so much for your advice though - I was not aware of that site until you mentioned it. Kind regards

Children
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