• Replies 35 replies
  • Subscribers 36 subscribers
  • Views 819 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

existing in society but not thriving - perspectives of autism - report to the UK Government by The House of Lords Autism Act 2009 Special Inquiry Committee

Phased

Perhaps like other autistic people I consider my experience to be existing in society but not thriving.

I exist somewhat behind a mask from others and most ironically from myself having only relatively recently been diagnosed autistic.

Like other autistic people I notice things that neurotypical people appear not too.  Like other autistic people I also misunderstand things that neurotypical people appear to find necessary to have explained.

It seems to me that as far as much of society works, autism doesn't exist and it does not wish to acknowledge autistic people co-exist within it.

At present I am experiencing this in my own particular way in respect of workplace discrimination which is covered by legislation as I understand it.  I am being hauled over the coals for what as far as I can understand it is pretty much normal autistic behaviour when one is stressed and not treated fairly and reasonably.

I am reasonably well supported and able to engage with this to work on getting things better for myself and others perhaps like me.  If interspersing sessions of curling into fetal position and banging my head against hard surfaces is covered by the definition of "able"... 

The recent report to the UK Government by The House of Lords Autism Act 2009 Special Inquiry Committee New autism strategy must deliver change for autistic people - Committees - UK Parliament is perhaps a step towards overcoming this.

However my first reaction is that on the basis of prior evidence, my moribund floundering and social repression being so deeply seated it will take a considerable amount of activism and self representation in order for significant change to happen.

I wonder if there is a wider thread here about parts of society "cherry picking" what they want to acknowledge to exist, talk about and engage with which is characteristic of neurotypical people more than it is autistic.

Perhaps the "special interest" thread of autism comes about from a weird extension of masking that autistic people engage with almost as a parody of this neurotypical behaviour?

- hehe notwithstanding what I've written if anyone with the same special interests as me wants to join in please do...

Best Wishes

Parents

  • I've yet to read the report, but we'll end up with the usual mess of services, if we're lucky they might even go as far as not just places to help us get benefits sorted out.

    I'm not sure that neurodiversities come as singles, they seem to like company, AUDHD seems to be the most common, I have ASC and partial synesthesia, which nobody seems able to cope with, just take a look at the reactions at what I said on my post about amazon goinf orange and horrible. People think sensory difficulties or extras as I prefer to call them, just mean going and sitting in a quiet room and blowing bubbles, before going back to it, not that it feels like being plugged into the mains electricity. We're well known for being able hear household appliances, but nobody believes us. It can be good, like a cat purring feels like velvet, I get told I'm being poetical, no I'm not this is what purring cats are like.

    Sorry I've gone off on one a bit here, but we're likely to end up with a camel, which is a horse designed by commitee.

  • in reply to TheCatWoman

    I know this is an aside irrelevance, but I actually really liked your desciption of amazon colour tragedy. I get this gritty feeling between my teeth thinking of the colour.

    I'm never sure if I have that, I never mentioned it in my assessment, but out walking ealier this year on a nice day, up the hills I was looking at the brilliant blue of the sky and it was like a could see air particles zipping about like synapses firing.

    It shant matter if any new centers are good or not, as the next switch of power will normally see them closed again. Like the Children's center's that were a life line for families when I had kids that were all shut to save money when they were really making a difference to the communities. 

  • in reply to Cinnabar_wing

    I am saddened by that feeling of powerlessness you describe  .

  • in reply to Cinnabar_wing

    hehe - both you and I desire raise for trying! 

Reply Children
No Data