New research on autism charities

I just came across some interesting / disturbing research about how major autism charities regard autistic people. The research paper itself is on PLOS One and you can find a more journalistic discussion of it on The Conversation.

The researchers analysed the annual reports and accounts of 11 large autism charities, and the abstract of their paper reads in part:

Representation within these reports emphasises adversities associated with Autism, and the language chosen to portray Autistic people largely describes Autism as an impairment. In contrast, charities represent themselves as the solution to the ‘problem’ of Autistic people, and thus deserving of increased resources and funding. Government is largely depicted as ineffective and deficient. We argue that these Autism charities are thereby upholding – rather than challenging – the disabling barriers in society experienced by Autistic people. For Autistic charities to better represent Autistic people and improve wider societal understanding of Autism, there is a need for more positive portrayals that challenge the ‘charity saviour’ trope in charity communications.

I’d be interested to know what you think about this.

Parents
  • I read The Conversation article, and was taken by surprise when I read the following:
    "For our study, we identified the largest autism charities in England and Wales... There were 11 charities that met these criteria".

    I was surprised because the only autism charity I know of is this one (NAS). NAS is the one that everybody seems to get signposted to by GPs and mental health professionals. If there are others, then why am I not aware of at least some of them?

    One of the reasons why I had originally joined this online community was because there didn't seem to be any groups in my local area for autists without moderate-to-severe learning difficulties. When I perused the various Advice and Guidance articles, the information seemed a bit too basic, and it didn't seem to represent me. As a result, I won't deny that I felt somewhat wary of joining the online community and ended up doing what a lot of other members have done... I lurked.

    It is my view that Autism is complex. How can Autism charities truly represent us when we are all so different in terms of how our autism affects us? I think  's carpet analogy sums it up well.

Reply
  • I read The Conversation article, and was taken by surprise when I read the following:
    "For our study, we identified the largest autism charities in England and Wales... There were 11 charities that met these criteria".

    I was surprised because the only autism charity I know of is this one (NAS). NAS is the one that everybody seems to get signposted to by GPs and mental health professionals. If there are others, then why am I not aware of at least some of them?

    One of the reasons why I had originally joined this online community was because there didn't seem to be any groups in my local area for autists without moderate-to-severe learning difficulties. When I perused the various Advice and Guidance articles, the information seemed a bit too basic, and it didn't seem to represent me. As a result, I won't deny that I felt somewhat wary of joining the online community and ended up doing what a lot of other members have done... I lurked.

    It is my view that Autism is complex. How can Autism charities truly represent us when we are all so different in terms of how our autism affects us? I think  's carpet analogy sums it up well.

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