Hi
I like many parents of a child with ASD worry about what will happen to him when I may not be around anymore. Who will understand ASD and his needs and help him? It is painful to think of.
I have an idea and would be interested to hear what others views on it are including the NAS. It is a bit morbid but a practical issue that could lighten the load.
An insurance policy which we, as parents/guardians would purchase via the NAS, which will mean if I died, an appointed NAS person would visit my son after my death to help support him with the aftermath and for say, a quarterly visit for the remainder of his life. Perhaps it would be a small group getting together with an NAS member of staff quarterly. My thoughts are at the initial brain storming stage but I can see potential in this for the parents to benefit from peace of mind, the child/adult with ASD and the NAS to raise funds.
I know we would pay whatever it took to know someone would be visiting him and checking he was ok, pointing him in the right direction of support, new initiatives, assisting filling out paperwork for benefits or whatever may be needed and that they understood his ASD.
I know this would be a big undertaking in terms of vetting the staff involved and the administration but I think it would be worth it.
What do you think?
