Have been diagnosed with Autism Spectrum Disorder later in life .

Hi , I am a 48 year old woman who has just been diagnosed with Autism Spectrum disorder on the 6th August this year after being mis diagnosed with Emotional unstable personality disorder since 2014 . I am very angry about this & am struggling to come to terms with this diagnosis. I am really struggling with Autistic rage & I just wondered if anyone else struggles with this & has some support or advice for me . I'm also feeling very isolated & lonely so I really hope this online support chat helps . Thankyou for reading 

Parents
  • Hello. Just for clarity, I assume you are angry about being formerly misdiagnosed, not angry about now being diagnosed with ASD.

    To have a mixture of emotions and struggle to reframe the past, particularly if it has not been easy or there have been mistakes, is normal.

    It takes time to adapt. If you can, try to let it out in controlled bursts. But you might also want to think about what you are angry about, or mourning, or missing, or think would have been different. Then challenge them to make sure they're really true.

    When dysregulated I can get upset about things that are not quite accurate.

    It is also easy to get sucked in. Make sure you are exploring for information and understanding, to make things better and calmer.

    Or are you saying you are now masking less so anger is more obvious and common?

Reply
  • Hello. Just for clarity, I assume you are angry about being formerly misdiagnosed, not angry about now being diagnosed with ASD.

    To have a mixture of emotions and struggle to reframe the past, particularly if it has not been easy or there have been mistakes, is normal.

    It takes time to adapt. If you can, try to let it out in controlled bursts. But you might also want to think about what you are angry about, or mourning, or missing, or think would have been different. Then challenge them to make sure they're really true.

    When dysregulated I can get upset about things that are not quite accurate.

    It is also easy to get sucked in. Make sure you are exploring for information and understanding, to make things better and calmer.

    Or are you saying you are now masking less so anger is more obvious and common?

Children
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