Have been diagnosed with Autism Spectrum Disorder later in life .

Hi , I am a 48 year old woman who has just been diagnosed with Autism Spectrum disorder on the 6th August this year after being mis diagnosed with Emotional unstable personality disorder since 2014 . I am very angry about this & am struggling to come to terms with this diagnosis. I am really struggling with Autistic rage & I just wondered if anyone else struggles with this & has some support or advice for me . I'm also feeling very isolated & lonely so I really hope this online support chat helps . Thankyou for reading 

Parents
  • Congratulations on your diagnosis and welcome to the community! 

    Following a diagnosis, it can be common for us to experience a lot of emotional dysregulation. Besides perhaps feeling some relief about now having an explanation for our past difficulties, this can also include working through a phase where we experience confusion, uncertainty, so-called "imposter syndrome", and/or (backward-focused) anger, frustration, grieving, and more. So please don't worry - it's normal! 

    As for many others here, my own diagnosis turned out to be much more of the start of a new journey, rather than a conclusion full of instant solutions for my difficulties.

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How you might feel after a diagnosis - includes perspectives from other autistics

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    Therapy (or counselling) is often recommended after a diagnosis, as a follow up action for your GP to arrange. If you prefer, depending on where you are in the UK, you may instead be able to self refer for talking therapy on the NHS.

    Before arranging it, you might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    I'll just mention a couple of books that I and others have found helpful early on in our post-diagnosis journeys:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

    How to Be Autistic (free download currently available via this page)

Reply
  • Congratulations on your diagnosis and welcome to the community! 

    Following a diagnosis, it can be common for us to experience a lot of emotional dysregulation. Besides perhaps feeling some relief about now having an explanation for our past difficulties, this can also include working through a phase where we experience confusion, uncertainty, so-called "imposter syndrome", and/or (backward-focused) anger, frustration, grieving, and more. So please don't worry - it's normal! 

    As for many others here, my own diagnosis turned out to be much more of the start of a new journey, rather than a conclusion full of instant solutions for my difficulties.

    The NAS has a great set of articles focused on "after diagnosis", including one covering how you might feel during the subsequent days / weeks / months. You might find them of interest and/or helpful:

    NAS - How you might feel after a diagnosis - includes perspectives from other autistics

    NAS - Other advice covering post-diagnosis including:

    • Talking about and disclosing your autism diagnosis
    • Emotional support for family members after a diagnosis
    • Formal support following an autism diagnosis
    • What can I do if formal support is not offered or is not enough

    Therapy (or counselling) is often recommended after a diagnosis, as a follow up action for your GP to arrange. If you prefer, depending on where you are in the UK, you may instead be able to self refer for talking therapy on the NHS.

    Before arranging it, you might find it helpful to borrow or buy this book, which includes discussion of various types of therapy and counselling, together with advice on choosing the right therapist or counsellor - all from an autistic person's viewpoint. Several of us here have found it very helpful:

    The Autistic Survival Guide to Therapy

    I'll just mention a couple of books that I and others have found helpful early on in our post-diagnosis journeys:

    Self-Care for Autistic People: 100+ Ways to Recharge, De-Stress, and Unmask!

    How to Be Autistic (free download currently available via this page)

Children
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