"Functioning" Labels

What are your thoughts on the "high functioning" and "low functioning" labels? They seem to be going out of fashion, and for good reasons. How would you describe yourself?

If someone were to tell me, "Oh, but you're very high functioning," they would completely be missing the point that I am only usually so in some areas while rarely so in other areas. They just see how different I am to a "real" Autistic person like Rain Man! However, what they don't see is that I'm working really hard to mask my difficulties as much for their benefit as for my own. I only appear "high functioning" because I'm trying really hard to function in those areas that I find particularly challenging. A person who is non-speaking, say, is then stigmatised as "low functioning" because they can't keep up the pretence the way I can, even if they function better than me in many other areas.

Are these "functioning" labels just a rating system for how good you are at masking and making other people feel less uncomfortable?

Parents
  • What are your thoughts on the "high functioning" and "low functioning" labels?

    I agree with the NAS's position on them:

    • DO say:
      • autistic person with high/low support needs
      • an autistic person with/without a learning
        disability
    • DON'T say:
      • high/low functioning autistic person
      • mild/severe autism
    • Explainer:
      • Functioning and severity labels are inaccurate and considered offensive; they fail to capture how a person’s needs may vary (they may excel at certain things while finding others very challenging) and fluctuate (according to the situation), and because they locate all challenges innately within the person’s ability rather than due to a societal or situational failure to meet the person’s access needs.

    NAS - How to talk and write about autism

  • This is helpful. I am still on the waiting list for assessment. I would describe my IQ as average. The word functioning is definitely unhelpful, as I feel very low functioning on some days when my brain is struggling to process things.

Reply Children
No Data