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Experiences of those who lived without diagnosis for some time

pietro_21

Hi :) I only recently had a formal diagnosis. It felt very liberating in terms of my identity, Lots of things started to make sense very quickly. I wanted to understand the experiences of other people with autism, as I am at this difficult crossroads where who I reveal this too is a bit of a minefield. To me it doesn't change anything but I feel like it might affect my career or relationships. Other peoples lack of understanding or willingness to engage with me is what worries me the most, as its kind of what I have been dealing with the first 45 years of my life up until now. Trying to sustain a job with all of the added difficulties, whilst having to feel somewhat inadequate internally for these, is ridiculous. Don't feel obliged to share anything personal, but your experiences and tips would be welcome as the last few weeks have been a bit of an emotional rollercoster.

Parents

  • I first shared my thoughts that I might be Autistic to my wife, but she shot down the notion saying “I’ve seen kids with Autism, you don’t have it.” Then I got tested and was diagnosed with it and my wife still was adamant I was not Autistic. It took me telling another family member and that person saying “Oh, that makes sense” for my wife to finally do research and realize that I was right. Now she’s extremely cooperative with my needs, for example helping me avoid crowds when we can or giving me more grace when I don’t talk to family enough at get-togethers.

    My diagnosis led to my daughter getting a diagnosis, which was absolutely necessary. Had I not, we would probably just assume we’re terrible parents for somehow raising a child to be so impulsive and sensitive. Truth is it’s not ours or her fault.

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  • I first shared my thoughts that I might be Autistic to my wife, but she shot down the notion saying “I’ve seen kids with Autism, you don’t have it.” Then I got tested and was diagnosed with it and my wife still was adamant I was not Autistic. It took me telling another family member and that person saying “Oh, that makes sense” for my wife to finally do research and realize that I was right. Now she’s extremely cooperative with my needs, for example helping me avoid crowds when we can or giving me more grace when I don’t talk to family enough at get-togethers.

    My diagnosis led to my daughter getting a diagnosis, which was absolutely necessary. Had I not, we would probably just assume we’re terrible parents for somehow raising a child to be so impulsive and sensitive. Truth is it’s not ours or her fault.

Children
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