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@@ Migraines @@ Help! :(

Coogybear

Hi Ya All, needing some advice.

My son has had migraines and headaches all his life and he's still only a teenager, but in recent years they've gone into overdrive.

At the moment he's under a Neurologist and awaiting an MRI as he's having severe migraines 3-4 times a week on average. It's interferring with everyday living and his college studies and to watch him sit a sob is heartbreaking.

Naturally, these are completely dibilitating. We think the episodes are largely stress induced as we have eliminated all the known food triggers, which also seem to bring on an attack.

The problem is he seems extrememly sensitive to these meds. He's been on beta blockers, which affect his balance, migraine preventors which render him unable to function (Unable to wake him, but no migraine.) and now he's been prescribed anti epilepsy drugs!

He also takes anti sickness medication to control the vomitting and is currently over using his relievers at 12 per month (max 8 per month) in an effort to get some relief.

We've been trying to get him to recognize anxiety triggers, but as he has ASD, pretty much every waking moment can be anxiety provoking for him.

Does anyone out there have a similar experience with migraines or has anyone had any luck with complimentary/alternative medicines etc

I'm desparate to make a difference for him, but i'm unsure what to do for the best!

Many Thanks

Coogybear XX

  • Hi,

    My son (12) also suffers CVS and has done for many yrs getting a diagnosis was a struggle as its a process of ilimination and only after a number of in hospital admissions due to being severely dehydrated that they diagnosed CVS, unlike yorkshirelass's daughter my son is not on any meds for this as he is already on 3 lots of medication for bowel and bladder incontinence, but recently I have been thinking about re refering him for his CVS as i think he is not able to tell me all the time when he is suffering from nausea, and this is now affecting how much he eats or doesn't eat as the case may be.

    I too recommend the CVSA UK website they have been a great organisation answering my many queries and concerns iver the yrs.

    Hope you get the help you need soon its horrible seeing the ones you love suffer and theres nothing you can do about it.

    Diane

     

     

  • Hi Coogybear,

    I'm really sorry to hear your son is suffering with such awful migraine.  I have suffered with migraine since I was about 11.  They used to occur about twice a month but would wipe me out for up to 3 days at a time.  I now take pizotifen once a day and the attacks haven't stopped completely but they are less frequent and a lot less painful and debilitating. 

    When I do get an attack I use a "4head" stick which I put on my temples and forehead (not too close to the eyes or they water loads) and within 15 minutes the pain has gone. It contains 90% levomenthal (a natural painkiller) and works by blocking the pain signal and relaxing the muscles in the head. I thought it might help your son as it safe to use with other medication.

    Take care

    tandemum